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The Transverse Myelitis Association Children’s and Family Workshop has been made possible through the hard work of many people, through the donations of thousands of dollars, through the contributions of information, time and experience and through the donations of goods and services. We would like to recognize the people, foundations, and companies who have so generously made this wonderful opportunity possible.
Workshop Thank You
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Opening Address
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Paula Lazzeri: TM at age 12
Stephen Miller: TM at age 13
Maureen Wroblewski: TM at age 14
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Presentation: Workshop Recreation Program; Recreation choices for the disability community: national organizations, camps and adaptive recreational equipment; active and passive entertainment choices (gaming, computers, art and music), including the role of technology
Todd Blind, Recreation Therapist, Children's Hospital; Mary Beth Moore, Recreation
Therapist, Columbus Parks and Recreation Department; Sue Sutherland, PhD, Department of Education, The Ohio State University (Executive Director of The Adaptive Adventure Sports Coalition)
Presenter Profiles
Handouts
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Updates on TM treatment and cure research and results
Douglas Kerr, MD, PhD, Neurologist, Director, TM Center Johns Hopkins
Profile
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Pain: developmental assessments of pain from preverbal infancy to young adulthood; medical strategies for the management of pain
Greg Barnes, MD, PhD, Pediatric Neurologist, University of Kentucky
Profile
Slideshow Presentation
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Management of spasticity symptoms
Leslie Morrison, MD, Pediatric Neurologist, New Mexico
Profile
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Management of bowel and bladder symptoms
Venkata Jayanthi, MD Pediatric Urologist, Children's Hospital
Handouts
Slideshow Presentation
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Vaccination Panel
Drs. Kerr, Barnes, Morrison, Pidcock
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Physical, social and emotional issues and strategies surrounding sexual dysfunction
Cindy Gatens, MN, RN, CRRN-A Clinical Instructor, Department of Physical Medicine, The Ohio State University College of Medicine
Handouts
Slideshow Presentation
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Pain management: behavioral strategies; Helping to prepare your child for doctor appointments and medical procedures
Lawrence Siegel, PhD, Clinical Psychologist, Dean of School of Psychology,
Yeshiva University
Profile
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Pediatric nutrition and diet issues surrounding TM
Ann Weidenbenner, MS, RD, LD, Department of Health;
Annette Haban Bartz, MS, RD, LD, Children's Hospital
Pediatric Nutrition Handouts
Slideshow Presentation
Ways to Increase Your Fiber Intake (web page version)
Vitamins that are often used as supplements (web page version)
Can Drinking Juice Help Ease Constipation (web page version)
Gluten-Free Diet (web page version)
Overview of Dietary Supplements (web page version)
The Office of Health Promotion
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Children with TM and the educational system: working with the school
system, working with teachers and support staff, advocacy and legal rights, setting expectations
Donna Owens, ORCLISH, Ohio Department of Education
Handouts
Slideshow Presentation
 Useful Websites for Parents
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Advocating for services: Community, state and national resources for the disability community -- medicaid, medicare, state entitlements, funding support for equipment and supply needs; protections and opportunities from the Americans with Disabilities Act
Ken Campbell, Disability Policy and Research, Nisonger Center, The Ohio State University
Profile
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Art Instruction for Children with TM: Their Creative and Inspired Abilities
Lori Stralow Harris, Art Therapist, Western Springs, IL
Handouts
Slideshow Presentation
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Tai Chi Demonstration
Tony and Naomi Brown and Pauline Siegel
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Use of electrical muscle stimulation: TES (Threshold Electrical Stim) and NMES (Neuromuscular Electrical Stim)
Leslie Morrison, MD, Pediatric Neurologist, New Mexico
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Selecting the most appropriate and most effective adaptive equipment in pediatrics for mobility; Orthopaedic Issues surrounding TM
Frank Pidcock, MD Pediatric Physiatrist, Kennedy-Krieger
Handouts
Slideshow Presentation
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Body Weight Suspended Treadmill Training
Charles Levy, MD Physiatrist, North Florida/South Georgia Veterans Health System
Profile
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Pediatric physical therapy: effective techniques and expectations
Mari Jo Pesavento, PT Chicago, IL
Handouts
Slideshow Presentation
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Pediatric occupational therapy: effective techniques and expectations
Bonnie Boenig, OT, Cleveland OH
Handouts
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Self-esteem and disability: helping children with TM build a healthy self; Managing stress and a marriage when you have a child with TM; Managing a family when you have a child with TM - sibling issues -- presentation and discussion
Lawrence Siegel, PhD, Clinical Psychologist, Dean of School of Psychology, Yeshiva University
Handouts
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Parent roundtable discussion and Q&A
Moderator: Sandy Siegel, PhD, President, TMA
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