I've been trying to find more literature on TM. I know there are a bunch of
Journal articles
but they don't have on line summary's. I'd Appreciate any suggestions you might
have.
Roger
Jerry Goldstein wrote:
> My name is Edrie and I have TM.
>
> Get yourself to a doctor who knows what he is doing immediately. I did not
> and because of delayed treatment, I am in a wheel chair and have other
> problems to boot
>
> Talk to several neurologists at major medical centers. Delayed treatment of
> TM could be fatal. I have read a lot about this disease and I am telling
> you to get moving.
>
> You may need high dose steroids.
> You probably need an MRI with contrast.
>
> If your doctor isn't going to take aggressive treatment action and
> aggressive diagnostic action, fire him.
>
> Do it now and quickly.
>
> At 10:53 PM 10/8/97 -0400, you wrote:
> >Hi all:
> >
> >I had my initial TM attack on Labor Day Weekend. I have only written to the
> >list a few times.
> >
> >I saw my primary care physician yesterday for the first time since seeing the
> >neurologist and he basically brushed me off and discounted my symptoms. He
> >has always been a great doctor before and I am so upset with him now. I
> >can't understand why he would act like this toward me. When I told him about
> >my difficulty walking, he said I needed to walk more for exercise. When I
> >told him about the trembling in my arm, he ignored it. He also wanted to
> >prescribe fenfluermine (spelling?), the part of Phen-Fen that is still on the
> >market. I guess he feels all of my complaints will go away if I lose weight.
> > I told him that I wasn't interested. He said he was surprised at the
> >diagnosis of TM. I told him the neurologist talked to me about the
> >possibility of having MS. He was quickly heading out the door, turned and
> >frowned at me, then said "I know, I read his notes. It doesn't fit the
> >pattern." And with that he was gone. I can't believe he dismissed me like
> >that!
> >
> >The neurologist called me yesterday and I told him about my current concerns.
> > He decided to schedule me for an MRI. He said we may have to go ahead and
> >do a lumbar puncture after that. I really do want to find out exactly what
> >is causing my problems. But, on the other hand I am afraid to go on. Does
> >that even make sense?
> >
> >This is such a scary thing. How do you all cope?
> >
> >Sharon M.
> >
> >
> >
>
> --
> Edrie Goldstein