Get yourself to a doctor who knows what he is doing immediately. I did not
and because of delayed treatment, I am in a wheel chair and have other
problems to boot
Talk to several neurologists at major medical centers. Delayed treatment of
TM could be fatal. I have read a lot about this disease and I am telling
you to get moving.
You may need high dose steroids.
You probably need an MRI with contrast.
If your doctor isn't going to take aggressive treatment action and
aggressive diagnostic action, fire him.
Do it now and quickly.
At 10:53 PM 10/8/97 -0400, you wrote:
>Hi all:
>
>I had my initial TM attack on Labor Day Weekend. I have only written to the
>list a few times.
>
>I saw my primary care physician yesterday for the first time since seeing the
>neurologist and he basically brushed me off and discounted my symptoms. He
>has always been a great doctor before and I am so upset with him now. I
>can't understand why he would act like this toward me. When I told him about
>my difficulty walking, he said I needed to walk more for exercise. When I
>told him about the trembling in my arm, he ignored it. He also wanted to
>prescribe fenfluermine (spelling?), the part of Phen-Fen that is still on the
>market. I guess he feels all of my complaints will go away if I lose weight.
> I told him that I wasn't interested. He said he was surprised at the
>diagnosis of TM. I told him the neurologist talked to me about the
>possibility of having MS. He was quickly heading out the door, turned and
>frowned at me, then said "I know, I read his notes. It doesn't fit the
>pattern." And with that he was gone. I can't believe he dismissed me like
>that!
>
>The neurologist called me yesterday and I told him about my current concerns.
> He decided to schedule me for an MRI. He said we may have to go ahead and
>do a lumbar puncture after that. I really do want to find out exactly what
>is causing my problems. But, on the other hand I am afraid to go on. Does
>that even make sense?
>
>This is such a scary thing. How do you all cope?
>
>Sharon M.
>
>
>
-- Edrie Goldstein