Re: Hello
Ellen Hertz (eshertz(AT)access.digex.net)
Tue, 30 Sep 1997 20:10:16 -0400 (EDT)
At 11:11 PM 9/29/97 -0400, you wrote:
>Hi eveyone!
>
>I am 29 and about a month and a half ago, on August 22, I ended up at the
>doctor's offfice and then the ER (over Labor Day weekend) with tingling and
>numbness from the shoulders down. I appear to be lucky. My swelling is at
>C4 and I never lost the ability to walk or breath - just some weakness the
>numbness. It has been about six weeks and I have feeling in my lower half,
>but still the odd tingling/numbness in my torso and in my hands. My hands
>are the worst - they get sorta stiff and sometimes ache.
>
>My neurologist ran every test possible - MRIs, spinal tap (loads of fun!),
>etc. and while she will not rule out MS she has diagnosed me with TM at this
>time. I am still rather in the dark, but at least you all seem to be an
>enormous support group - that is wonderful - I have felt so scared, confused,
>angry, etc - if anyone would be willing to email me with what they know I'd
>truly appreciate it! I am currently working with not only a neurologist, but
>also with a holistic therapist/healer - she is wonderful for support and
>keeping positive and helping me know I can keep this "condition" under
>control! I am still confused about whether or not my symptoms could/will get
>worse or if I am ok...anyone know???
>
>Anyway, I'd love to talk to someone who has had a similar experience in terms
>of having "less severe symptoms" - thanks - you all are in my prayers!
>Kelly
>SouthKen(AT)AOL.com
Kelly,
I have TM with less severe symptoms. I have discovered just how lucky I am
from reading this list and don't want to annoy anyone who has to contend
with more disability, but you should know that it is possible to not get worse.
About 10 years age, I started to be annoyed with tingling in my right foot.
I attributed it to poor circulation and neglected it, One day, the foot went
completely numb. I was hospitalized and given IV prednosolone for about a
week. The drs tell me I am 80% reovered. My balance never was very good to
begin with and now it may be a little worse, but I walk. The only real
problem remaining is the tingling and very slight occasional twitching in
the right foot. When it is too annoying, darvocet relieves it to the point
that it is bearable.
It has been this way for about 8 years. Good luck!
Ellen