Re: Hello
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Mon, 29 Sep 1997 23:24:54 -0500
SouthKen(AT)aol.com wrote:
>
> Hi eveyone!
>
> I am 29 and about a month and a half ago, on August 22, I ended up at the
> doctor's offfice and then the ER (over Labor Day weekend) with tingling and
> numbness from the shoulders down. I appear to be lucky. My swelling is at
> C4 and I never lost the ability to walk or breath - just some weakness the
> numbness. It has been about six weeks and I have feeling in my lower half,
> but still the odd tingling/numbness in my torso and in my hands. My hands
> are the worst - they get sorta stiff and sometimes ache.
>
> My neurologist ran every test possible - MRIs, spinal tap (loads of fun!),
> etc. and while she will not rule out MS she has diagnosed me with TM at this
> time. I am still rather in the dark, but at least you all seem to be an
> enormous support group - that is wonderful - I have felt so scared, confused,
> angry, etc - if anyone would be willing to email me with what they know I'd
> truly appreciate it! I am currently working with not only a neurologist, but
> also with a holistic therapist/healer - she is wonderful for support and
> keeping positive and helping me know I can keep this "condition" under
> control! I am still confused about whether or not my symptoms could/will get
> worse or if I am ok...anyone know???
>
> Anyway, I'd love to talk to someone who has had a similar experience in terms
> of having "less severe symptoms" - thanks - you all are in my prayers!
> Kelly
> SouthKen(AT)AOL.comHi Kelly,
My name is Jo Ellen, October 6 will be the first anniversary of
my TM (I am not celebrating!) :) I have damage around T-10 or so, (can't
remember exactly) I can't walk, working on standing up and will be going
to be fitted with KAFO's next week. I have tingling in my feet and
occasionally in my hands. They couldn't figure out what I had for the
longest time, initially they said it was a stress related psychosis!
They finally figured it out after about 2 months, I was in the
hospital so much and I tended to cruise around (gift shop, library,
chapel, rehab etc. ) that some people thought that I worked there!
I don't really qualify as having "less severe symtoms" but I
think everyone can see some similarities in other cases anyway.