Re: any similar case

:- (wilsonco(AT)netvigator.com)
Thu, 18 Sep 1997 09:26:05 +0800

> ** Reply Requested When Convenient **
>My daughter was diagnosed with Transverse Myelitis on 6/9/97 at the
>age of 6. She is now 7. She was paralyzed right below her chest but it
>has moved down to T9 and has stayed there. Her prognosis is that she
>will be paralyzed for life because of the rapid onset of the myelitis. She
>has a lot of tone in both legs which causes spastic jerks and tightness in
>her legs. She is currently on Baclofen and Valium for this. She does
>self-cathing but about a month ago she started becoming incontinent
>between cathing. About two weeks ago she started to tell me that she
>had to urinate and actually did. She saw the Urologist and he has
>scheduled a test called a CMG for this Thursday. I would like to hear
>from someone who has been through this.

Frist of all, I am sorry for my poor English.

My name is Wilson, I am chinese and live in Hong Kong. I am very
sorry that your child has to go through this trauma.

Please don't take one diagnosis as a law,
although she have TM, but it may not mean that she will paralysed
for life, I was work in REHAB. field (before I seat on a Wheelchair),
I know many patient has TM and make more good recovery,
Hope you thinking positive that your daughter also can make some
good recovery.

Try to help her to keep motivated, because she may have a long road
ahead,
You know, A younger TM patients seem to have a better chance of
recovery,
their nervous system are still developing.

I know that is harder for you and your child but you're not walking
alone,
We all of us are supporting for you and your child.

I also had TM at 1995, so I know that is a long long read ahead,
Anyway, Keep thinking positive! :-)

Hope that help! :-)

Best regard,

Wilson

http://home.netvigator.com/~wilsonco