Re: any similar case
Joyce Kreuter (jek160(AT)psu.edu)
Wed, 17 Sep 1997 07:07:42 -0400
>>** Reply Requested When Convenient **
>>My daughter was diagnosed with Transverse Myelitis on 6/9/97 at the
>>age of 6. She is now 7. She was paralyzed right below her chest but it
>>has moved down to T9 and has stayed there. Her prognosis is that she
>>will be paralyzed for life because of the rapid onset of the myelitis. She
>>has a lot of tone in both legs which causes spastic jerks and tightness in
>>her legs. She is currently on Baclofen and Valium for this. She does
>>self-cathing but about a month ago she started becoming incontinent
>>between cathing. About two weeks ago she started to tell me that she
>>had to urinate and actually did. She saw the Urologist and he has
>>scheduled a test called a CMG for this Thursday. I would like to hear
>>from someone who has been through this.
My son, age 9 had TM when 13 months old. He recently went from needing
ditropan to help keep dry, to keeping dry by himself - very few little drips
escape like 2 years ago. He always feels the sensation to "go" at the last
minute, when he is really full. Tests (the CMG) show that he doesn't void
completely and we need to keep reminding him to keep peeing even if the full
feeling is gone. He had a CMG in August, he was quite, quite apprehensive
but his gram had given him $20 that morning and planning to get a new
computer game during kept his mind off his troubles. Needless to say we
headed right for the mall after the test.
Joyce