any similar case
BAKERJU(AT)wpmail.onc.jhu.edu
Tue, 16 Sep 1997 10:52:02 -0400
** Reply Requested When Convenient **
My daughter was diagnosed with Transverse Myelitis on 6/9/97 at the
age of 6. She is now 7. She was paralyzed right below her chest but it
has moved down to T9 and has stayed there. Her prognosis is that she
will be paralyzed for life because of the rapid onset of the myelitis. She
has a lot of tone in both legs which causes spastic jerks and tightness in
her legs. She is currently on Baclofen and Valium for this. She does
self-cathing but about a month ago she started becoming incontinent
between cathing. About two weeks ago she started to tell me that she
had to urinate and actually did. She saw the Urologist and he has
scheduled a test called a CMG for this Thursday. I would like to hear
from someone who has been through this.