> Today I have been in touch with a lady in London who seems to me to
> have TM. She has been
> affected for about a year now. She hasn't (to her knowledge) been
> diagnosed with TM or anything
> else but she doesn't seem to have much help and has not seen a
> Neurologist since January.
> She phoned me tonight and was telling me about the creepy crawly
> feeling across the top of
> her body which is starting to keep her awake at night, I was able to
> tell her that a lot of people
> on this list mention similar feelings to that & she might be able to
> get drugs to relieve it if she
> can manage to get an appointment with her Doctor. This made her feel
> a lot better as she
> realised that it isn't something happening to her alone. She doesn't
> have access to the internet
> so I have said that I will post her anything that she might find
> helpful. The other things that she
> mentioned were the development of glaucoma - it might not be related,
> and she has also found
> that she is regularly coughing up blood. I hope she will manage to see
> her local Doctor asap but
> wondered if anyone else has any ideas? She walks on 2 sticks, has to
> self-cathe and basically
> has been forgotten by the Health Service. Her physio stopped after
> her 4 months in hospital so
> she doesn't really get much help now. I think there's a need for a
> support group for those not on
> the internet but I'm not sure how to develop it. Meanwhile I seem to
> be haviing a relapse and am
> on a quick course of high dose steroids again - hope we can stop it
> before it gets a hold! I look
> forward to hearing from anyone with any brainwaves.
> All the best
> Debbie
> S.England
I advise you strongly to visit a doctor. But still, if it is TM there
is actually an excellent chance to get over it, so the muscles recover
very quickly.