new subscriber
Tracey Taylor (filmday(AT)wr.com.au)
Wed, 6 Aug 1997 18:14:36 -0700
Hi, I've just subscribed, because I would like to find out more information
on Transverse Myelitis. My story- I was 27 when I was diagnosed with
Transverse Myelitis after becoming paralysed from just under my breasts
down. It was a terribly scary time, but after a fairly brief period of
time, was walking again and trying to get on with my life. What I want to
know is how other sufferers deal with the on-going symptoms, and if there
is any solution or cure. I still self-catheterise and have to take
medication so that I don't "leak" between catheterising. My genitals are
numb, so sex isn't great. I get tired. I don't know whether this is a
symptom or just a by product of life. Can anyone share their syptoms with
me so that I know what is normal and what is not. My neurologist stopped
wanting to see me as soon as I was out of the hospital, telling me that
whatever improvement I made in the first year and a half after getting
Transverse Myelitis was as good as I was going to get. Is this true? Have
other sufferers recovered fully after many years? Please let me know. Do
other sufferers just feel like crying sometimes, and feel guilty about it
because to everyone around you you look find and whole?
- Tracey