Re: Neurontin

Gail Sanders (gsanders(AT)mindspring.com)
Mon, 21 Jul 1997 09:23:14 -0400

I've been taking Neurintin since about Feb, and I have had similar
experiences with it. I started taking it just as you have, but I have been
told to take more - at least one more 300mg per day. It is not as
effective as it was at the beginning, and I think it has caused me to gain
weight, which makes it more difficult for me to balance. I'm trying to get
my doctor at Emory to change the medication, but he will be out of the
country until mid Aug. I have an appt with another doctor there (at Emory)
tomorrow, but I may not go, because it will be expensive, and the doctor
may not be as understanding as my regular doctor. Advice on this?

I'm considering trying bee venom therapy. I've read some about it on the
'net, and it sounds like it has some promise. I also want to stop using
the beta interferon. I don't think it's helping at all - may be making
things more difficult.

My diagnosis, by the way, was officially myelitis, but I had plaque in my
spinal cord at about T5, and there were effects of the disease on both
sides of my body. Since I have had several 'attacks' of myleitis, the
doctor made the diagnosis MS so that I could start taking the Avonex (beta
interferon). None of it makes much sense.

More later, maybe - I am Proudly at work, even though it's been quite a
struggle lately - with a cane and the heat...

Gail Sanders Lockerman
gsanders(AT)mindspring.com

----------
> From: Kay Cole <kcole(AT)wave.co.nz>
> To: tmic-list(AT)eskimo.com
> Subject: Neurontin
> Date: Sunday, July 20, 1997 8:54 PM
>
> I have been taking Neurontin for 4 months at 300mgs 3 times a day and
> until recently the pain levels have been greatly reduced. I am now
> finding that the pain control doesn't seem to be as effective and am
> wondering if anyone has had the same experience with this drug. I'm
> relucant to come off the drug in case the pain becomes even worse so
> would appreciate any feedback.
> Thanks Kay