Re: whos still paralized and how have you been doing

Lori Gasik (lgasik(AT)kiwi.dep.anl.gov)
Sun, 13 Jul 1997 11:46:26 -0500

>Bill
>I am a new subscriber to the list and I was wondering if you might be able to
>help me. Two years ago my daughter, she will be 3 next month, was
>incorrectly diagnosed with Guillain-Barre Syndrome. Due to the fact that she
>can only walk with her dafo's and a walker and it seems similar to what you
>mentioned you can do, can you give me any insight as to what is going on
>inside of my daughter's body? What does she feel and what doesn't she feel.
> We just got the diagnosis of ATM this past Thursday. It seems to make more
>sense than the original diagnosis as the symptoms listed are much more in
>line with what I see in her. Any input you or anyone else can provide I
>would much appreciate. Thank you.
>
>Julie (my daughter's name is Rachel)

Hello well I can't really say how she feels because everyones different but
if she feels like me then her feet are hypersensitive and can only feel hot
and cold on one spot of my leg and as of yesterday I can now feel
goosebumps on my legs and I can sweat because when I woke up this morning I
noticed my legs werer hot andsweating not a whole lot just a little bit and
theres alot of weird things people can't explain about me like I could rub
my stomach and it straightens my leg and I can straighten it myself by
tring to tighten my stomach and I could wiggle all my toes by doing that to
but I'm real sorry thath that happened to her and pretty much anyone this
happens to but I've been doing alot of research so don't you worry about
your daughter because if she doesn't walk on her own then a cure will soon
provide it. There starting the first human clinical trials on this new
drug therapy that got paralized dogs walking and running again and there
doing it in four countries outside the united states and I e-mailed the
person who gave this information and I'll hopefully be getting more
information on it soon I hope your daughter gets better as soon as
possible.