Re: whos still paralized and how have you been doing

Jlbbb(AT)aol.com
Sun, 13 Jul 1997 01:16:44 -0400 (EDT)

Bill
I am a new subscriber to the list and I was wondering if you might be able to
help me. Two years ago my daughter, she will be 3 next month, was
incorrectly diagnosed with Guillain-Barre Syndrome. Due to the fact that she
can only walk with her dafo's and a walker and it seems similar to what you
mentioned you can do, can you give me any insight as to what is going on
inside of my daughter's body? What does she feel and what doesn't she feel.
We just got the diagnosis of ATM this past Thursday. It seems to make more
sense than the original diagnosis as the symptoms listed are much more in
line with what I see in her. Any input you or anyone else can provide I
would much appreciate. Thank you.

Julie (my daughter's name is Rachel)