Re: Transverse mylitis

comm97 (comm97(AT)cris.com)
Sat, 31 May 1997 16:32:29 -0400

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If the Dr is not familar with the disease process, demand another =
neurologist--promptly. The critical factor in treatment is diagnosis. =
What type of labs have been run? How framilar is the physican with =
Myleopathy/Myleitis etc. How many cases have they managed? Knowledge =
is key. Ego can get in the way of proper treatment. Consider transfer =
to another hospital if you are not satisfied with the care.
Michael
----
From: SewingSMB(AT)aol.com
To: tmic-list(AT)eskimo.com
Date: Saturday, May 31, 1997 4:10 PM
Subject: Transverse mylitis

My husband is in Mt. Sinai Hospital, Cleveland. He was admitted last =
Sunday
after 3 weeks of worsening back pain. He has much numbness from the =
waist
down, but is able to walk with a walker.

Tests have been full MRI head to base of spine, bone scan, and spinal =
tap.
After 6 days of heavy doses of steriods,the first three were in the =
vein,
the fourth day he missed because of doctor error, he is still losing =
ground.

On Monday, he is scheduled to have a repeat MRI with dye and a repeat =
spinal
tap.=20

Could someone help me? I'm really scared about what is happening. He
doesn't "fit the pattern" so our neurologist seems to suspect something =
else
may be involved here.

Thanks for listening,
Sandra

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If the Dr is not familar with the disease process, demand another=20 neurologist--promptly. The critical factor in treatment is diagnosis. = What=20 type of labs have been run? How framilar is the physican with=20 Myleopathy/Myleitis etc. How many cases have they managed? Knowledge = is key. =20 Ego can get in the way of proper treatment. Consider transfer to = another=20 hospital if you are not satisfied with the care.

Michael

----
From: SewingSMB(AT)aol.com
To: tmic-list(AT)eskimo.com
Date: Saturday, May 31, 1997 4:10 PM
Subject: Transverse mylitis

My husband is in Mt. Sinai Hospital, = Cleveland. =20 He was admitted last Sunday
after 3 weeks of worsening back pain.  He has much numbness from = the=20 waist
down, but is able to walk with a walker.

Tests have been full MRI head to base of spine, bone scan, and spinal = tap.
After 6 days of heavy doses of steriods,the first three were in the = vein,
the fourth day he missed because of doctor error, he is still losing = ground.

On Monday, he is scheduled to have a repeat MRI with dye and a repeat = spinal
tap. 

Could someone help me?  I'm really scared about what is = happening. =20 He
doesn't "fit the pattern" so our neurologist seems to suspect=20 something else
may be involved here.

Thanks for listening,
Sandra

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