> Hi, I'm new to this list, having just found you this pm.
> I'm hoping to find someone who has been diagnosed with radiation-induced
> transverse myelitis.
> My 44 yr old husband had radiation treatment for Hodgkins Disease when he
> was 24 and has slowly lost all the muscles around his neck and shoulder
area.
> He is now experiencing a tingling sensation in both hands which seems to
be
> getting worse.
> Two neurologists have seen him but sent him home and said come back in a
> year. ???
> They say it might be myelitis but aren't sure. He's had a MRI with no
> conclusive results.
> Can anyone help us find out more info. ?
> Thanks.
>
>
> Taber, Alberta
> Canada
Margie,
Is there another neurologist near you that your husband could see for a
second opinion? It seems so odd that they would send him home and not want to
see him again for a year! Has he had any testing besides the MRI? When I was
in the hospital, they ran multitudes of tests on blood samples for everything
from lyme disease to vitamin B-12 defiency to lupus to I don't know what all
else, but I did read the pages and pages of test results. I would push for
more testing to rule out some of these other possibilties. It may take you
back to square one and you may still not know what's wrong, but then again
they might find something. At least you'll know you've checked out other
potential problems, which is a lot more comforting than waiting.
Wishing you all the best, prayerfully,
Barbara