standing

Lori Gasik (lgasik(AT)kiwi.dep.anl.gov)
Thu, 22 May 1997 15:45:36 -0500

Hey its me again Bill. Hows eveyone been Ive been doing pretty
good. Lately I've been having more spasms which ain't really good but I do
my standing dayly now and this morning I was able to stay up for two
minutes without my legs giving out it might not seem that long for you guys
but that was the longest two minutes for me. I hope that with time this
tone will turn to more of a controlled movement for me. You see I want to
be able to tell my leg to straighten and have it do it, but the only way I
can is if I try real hard and tense up alot. The only thing I can move
direct on command is two of my toes on the right side. I'm hoping for the
best for all of us because this whole thing really sucks. you know one day
your fine next day your paralized and its not like we got into a car
accident or got shot it just happened adn there was nothing we could do to
prevent it. I definately notice way better trunk stability. I can walk
with braces and a walker now for short distances. I'll tell you one thing
if this doesn't get better on its own I swear to God that I'll find a way
to get out of this dang chair. Even if I'd need mechanical legs. Well
gotta go

Bill Kennedy