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To: tmic-list(AT)eskimo.com
In a message dated 97-05-06 16:46:08 EDT, you write:
> It is
> hard for people to understand because I never "looked sick". How is a
sick
> nervous system supposed to look anyway? It is great to have people who
> understand and share info with! Finally!
>
> Thanks, Beth Shears
I have run into this, too -- people think I'm back to normal and all well
because it is not obvious, unless someone watches closely or it's a really
bad day, that I have a problem. Once when I was talking about a numb feeling
in my back, someone asked, "Are you sure you're not over-analyzing your
body?
I mean, if I think about it, I can't particularly feel my back, either."
Sigh. I have two friends who had strange symptoms, multitudes of tests, and
no diagnosis for months, and people began to ask, "Are you sure this isn't
all in your head?" Thankfully, they were diagnosed later (not with TM). I
don't think a lot of people understand that the medical community, marvelous
as it is, doesn't have all the answers yet.
Barbara
>>
Barbara and Beth,
I couldn't agree with both of you more. The illness is deceiving to others;
once you have progressed to a certain point and problems are no longer
obvious, people around you start to consider you completely recovered.
Someone the other day asked why I hadn't joined my company's softball team.
I had to explain that I'm very happy to walk without stumbling let alone
run. Although sometimes, whatever the reason I am happy to be considered
"normal" even if its mistaken. It can show me that I am focusing too much on
my lingering problems and not enough on the extent of my recovery.
Kindest Regards,
Gary