Re: fatigue

Deborah Capen (dcapen(AT)ivic.net)
Fri, 9 May 1997 20:58:17 -0700

To Bill:
In my experience, I can tell you, it is very hard to fall asleep, because
nighttime is when the hypersensitivity in my leg is most irritating, can't
decide if it is hot or cold, and the feeling like a giant scab being ripped
off of the back of my thigh, and my heels still feel like they are wrapped
in dry ice. All of those feelings make it hard to fall asleep.

The back spasms are probably caused by the physical therapy. My back
spasms started after physical therapy started, the first spasm was so bad,
felt like a knife was being jabbed into my back, all the way through to my
rib cage in front, then twisted. I was given an injection of Valium to
relieve the back spasm. Then put on the Baclofen, and valium at night to
prevent further spasms.

It does get better. My Neurologist had to remind me on Wednesday, that
only 6 percent of TM patients have relapses, and little improvement. He
told me that sometimes his patients look at that 6 percent and think of it
as bad news, but he told me that the only way you should look at it is that
94 percent recover with no relapses. And you have to keep thinking that
way. Plus you are younger, and the younger you are, the better your
chances are for quick improvement. Sure, while you are waiting for the
improvement you are going to have bad days. We have all had those bad
days, but then you just have to think, "It can only get better, can't get
any worse".

Anyway, that is my preaching for tonight. Took my Nortriptyline, now going
to take my Valium and get my good night's sleep, like the doctor ordered.
Keep thinking positively, plenty of rest and no stress.

Good night,
Debbie
dcapen(AT)ivic.net