Went to see my neuro today. He kind of did the same thing. At times
"they" make us feel like hypochondriacs or mental patients. But, I guess
it is because they don't know what to do. When you said, "sometimes it
seems I'm not seeing completely clearly, but if I cover one eye and then
the other, I see fine with them individually". That is exactly how I have
felt for the last 5 days. It just seems as if my eyes are not focusing
completely. Doc doesn't seem too concerned. He does want me to have
another MRI of the brain in July (August will be a year since first
symptoms). So we will see. He also mentioned sending me to a neurological
ophthomalogist if this continues. Like you, I often wonder what difference
does it make because there is not much they can do anyway. So I just try
to have a positive attitude (even though I am a little short in that area
this week) and eat right, exercise a little, stretch, and try to avoid
stress (ha-ha, avoiding stress is a joke around here). Anyway, hope your
eyes get better. I believe a myelogram shows more. My doc doesn't want to
do another MRI of the spine because he knows that spot is there and we have
already done two (sept and oct 96)of the c-spine (never had one done of the
lower spine area). I am just wondering if the lesion at C2-3 in my neck
could cause problems with dizziness and vision. Have a good weekend.
Nicole
>I have also had some odd things go on with my eyes from time to time. Last
>Dec. I started having flashes of light from my left eye. A man in my church
>who lost eyesight in one eye due to a detatched retina said if he was having
>flashes of light, he'd call his dr. to meet him in the emergency room. I
>called my dr., he referred me to an opthamalogist, I called his office, no
>one acted like it was a emergency, but they scheduled me for an appt. He said
>my retina was fine and that as we get older sometimes the substance inside
>the eye thickens and pulls at the retina. He told me to call if it happened
>again. I told him about my TM, but he didn't think it was related. It did
>happen again 20 days later; I called Sun. night and got his associate. Again,
>it seemed like "no big deal" -just told me to come in the next day. I did; he
>said my retina was fine. I asked if anything else could cause this. He said
>some viruses, and there was nothing you could do for those besides let them
>run their course. So I left somewhat frustrated. Since then, from time to
>time I do experience odd things with my eyes. Sometimes there are patches of
>slight blurriness or gray spots. Sometimes it seems I'm not seeing completely
>clearly, but if I cover one eye and then the other, I see fine with them
>individually. Or if I put my hands above my eyes like a visor, then I see
>fine. I don't know if that has to do with focus or the way the light is
>coming in or what. I still do see flashes of light, sometimes white,
>sometimes blue, occasionally, but not as much as I was in Dec. I have since
>read on this list about others with eye problems and about optic neuritis.
>
> I told my neurologist about this and other problems. He said we could
>check again for MS -- MRI and spinal fluid did not indicate it at the
>beginning, but he told me this could "turn into" MS. But, he said, we'd have
>to consider whether that would change how we're treating this -- he said
>there is really not much that can be done for MS other than experimental
>drugs, some of which have to be administered by injection every other day and
>are very expensive. Those of you who have been diagnosed with MS, is this
>what you've been told? He also said we'd have to consider insurance.
>Sometimes a diagnosis of MS can cause rates to go higher and prevent you from
>getting insurance if you have to change companies. But he basically left it
>in my lap -- said he'd schedule another MRI if I wanted. I'd like to do one
>just to see if anything is different -- but, as he said, if there isn't
>anything else that can be done anyway, I don't know if there's any reason.
>They never did do an MRI of the spine, only of the brain, because they had
>done a myelogram of the spine. I don't know which shows more.
>
> Anyway, yes, if I were you, I'd ask the neurologist about it. He may say
>something different. I'd go ahead for a second opinion, too. I think most
>insurance companies cover that, and it can't hurt.
>
>Wishing you encouragement......
>Barbara
>
>not proofread...sorry...it's late...
>
>
>