Re: MS &TM

Jerry Sidman (jsuk(AT)oak.phx.mcd.mot.com)
Tue, 6 May 1997 14:05:21 -0700

Bill,

That's great news that you are on your feet even for a short while. How long
is it since the first symptoms ? It took me about 3 months before I could get
back on my feet and initially any walking involved dragging and then slightly
lifting a straightened leg a few inches at a time. This could not really be
described as walking but I recall thinking "well at least if can stand up
that would be useful". Of course this quickly moved to "well if I hobble
around that would be even better" , and so on. The crazy thing was that even
though after I got a lot of my muscle control back I still had to learn to
walk again. This was a difficult and often painful process. Hopefully you
will see further improvement as time passes.

Jerry

-- Begin original message --

> From: Lori Gasik <lgasik(AT)kiwi.dep.anl.gov>
> Resent-From: tmic-list(AT)eskimo.com
> Date: Tue, 6 May 1997 13:47:56 -0500
> Subject: Re: MS &TM
> To: tmic-list(AT)eskimo.com
> Reply-To: tmic-list(AT)eskimo.com
>
> >Dear Bryan, (or Jim L.)
> >
> >Thank you for this information regarding the difference between TM and
> MS.
> > Many times after reading the correspondence via the TM group and list I
> have
> >been confused. Several questions have run through my mind.
> >
> >1. How do they tell the difference between MS and TM when viewing it
> through
> >an MRI or by spinal tap? (other than you only have the initial onset
> followed
> >by symptoms so described among us).
> >
> >2. For those who get both TM and MS how do they know which is which
> (lesions
> >caused by both I know, but I have read here in the group that some TM
> victims
> >have more than one area of damage to their cord,for example mine is
> located
> >at
> >T-10. No others were found.)?
> >
> >3. Can and is there a greater likihood of TM victims getting MS or vise
> >versa (not that I need anything else to worry about)?
> >
> >4. The explanation I have been given regarding "HOW did I get this?"
> has
> >been as vague as the Clinton Whitehouse on any given day, yet my
> treatment
> >has been outstanding (PT and my doctor was quick to act to counter the
> TM's
> >havoc) so I know they know what they are doing. I just wonder if there
> have
> >been any studies done on medical history and and basic stats re TM
> vitims,
> >not just "my doctor said".
> >
> >5. Can the virus that caused TM reactivate?
> >
> >Kindest regards,
> >Beth
> >
> >
>
> Its me Bill again you know I'm starting to wonder how mant TM
> vitims do they usually see because since I got it there have been four
> more cases close by this area I live in and I'm wondering if maybe theres
> something in the air or something like that because the statistics I heard
> were 1in every 3.4 million. Either those statistics are completly wrong
> or
> somethings going on around here and I think they better look into it.
> Besides that know the tone in my legs is getting a little bit to crazy
> there always toned now. And I just started standing on my own legs for
> the
> first time and I could hold myself up for about a half a minute till my
> legs give out but hey its gotta start somewhere. You know what now I'm
> really pushing it my main goal in life right now is to walk again. And
> I'm
> not gonna give up if I fall I fall but I'm gonna get right back up and do
> it again until one day I'll see myself walking around with my friends
> again. And I was wondering when you guys had these weird tone flexs did
> it
> start getting worse and worse. But then it aventually turned into a form
> of volontary movement. Please write back ‰
>
>
>

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