Re: for Bill Kennedy, "weird tone reflex"
Lori Gasik (lgasik(AT)kiwi.dep.anl.gov)
Sat, 26 Apr 1997 20:20:52 -0500
>In a message dated 97-04-26 03:09:20 EDT, you write:
>
>> When I read Beth's response to Bill: The "weird tone reflexs" you speak of
>> >in your letter occured in my case as well. Many times these "tone
>reflexs"
>> >would come at any given time, and would be followed by some form of
>> >controled movement. These weird tone reflexs would not occure in synergy
>> >with other groups of muscles. for instance my thigh muscles would flex
>> >(spasm) yet the other muscle groups associated with normal synergy would
>> not
>> >work. It would almost appear to be an alien under the skin, rigorously
>> trying
>> >to get out."
>>
>> This was explained exactly the way I felt as well during the first three
>> months. The "alien under the skin" is just the way it appears. These are
>> called "fasciculations" which is a fancy word for involuntary contraction
>> or twitching of muscle fibers under the skin. I used to notice these even
>> more after my aquatic therapy or any exercise. Very encouraging story
>about
>> the man who had improvements up to 18 months. This has given me a lot of
>> hope.
>>
>> Regards,
>>
>> Karen
>>
>
>It's funny how someone's description will hit the nail on the head. I
>experienced this same type of thing in my front thigh muscles and still do
>sometimes when I get cold.
>
>Barbara
Today and last night have been pretty cool for me. Last night I was
able to wiggle my toes on the left side but now it seems like I can't do it
no more and I know for a fact that the toes weren't having spasms it was
definatly voulontary. But I don't feel to bad about it because I know it
will come back. And besides that I am now able to straighten my legs and
hold it for about 10 seconds. I do it when I'm sitting in my chair, but I
really have to try hard to do it. I really hope that it keeps getting
better day by day. And if I end up walking again your gonna see won of the
happiest teens on this earth. And I'll never forget this. And I'm gonna
try to find a way to make sure others won't have to suffer the same
tradgedy. Another thing is its seems like theres been an outbrake of tm
lately, because when I was at RIC in Chicago they saidthat they only get
about 2 cases a year and since December this year they've seen about 6
cases. And I just heard from one of my moms freinds that two students in
another school by me have gotton something similar to this just lately but
I don't know if it's tm or not.
sincerely
Bill Kennedy