Re: General Questions
Lori Gasik (lgasik(AT)kiwi.dep.anl.gov)
Sat, 26 Apr 1997 11:53:36 -0500
>Folks,
>
>I have just recently signed up for the list but from the couple of mails I
>have sent out you may have seen that I am one of the lucky ones who made a
>complete recovery from what was a quite serious ATM attack. From reading
>through the archives my initial reaction was that most people seemed to
>have faired a lot worse. However, after giving this more though I wondered
>if this was a statistical quirk in that the people who contribute to this
>type support group may in general be people with residual effects of TM? I
>would like to know if anyone has any actual stats for the recovery rate for
>TM. The figures I heard when I was in hospital was 1/3 no recovery, 1/3
>partial, and 1/3 full, but I never had access to any supporting literature.
>Another topic which I am interested in from a personal point of view is
>reoccurrence of TM. Obviously having escaped the effects of TM I do not
>want to be hit again. I have had great difficulty in finding any consistent
>information on this subject. Again, I have observed a statistical slant
>towards people who have had reoccurences communicating on the support
>group. I have also seen statements from MD's who believe that a person who
>has had TM as a primary symptom (i.e. Not secondary to MS etc) is not any
>more likely to have another TM attack than someone who has never had TM.
>These are obviously extremes and I would love to hear from anyone who has
>some actual factual studies.
>
>Some for some time now I thought about writing a book on my TM episode.
>Although this may give TM some exposure, I also wanted to let people know
>about life in a wheel chair. It was a very profound experience for me and
>it was almost erie how you seemed to exist in the same space as other
>people but in another dimension ... I'm sure you folks know what I'm
>talking about. Having been there and come back then I would hope that it
>would not sound like sour grapes. I would like to include other peoples
>experiences as well and would welcome any contributions. Anyhow I would
>love to get some feedback on whether anyone thinks this is a worthwhile
>endeavor.
>
>Regards
>
>Jerry
Its me bill again another boring day at home but these last two days
have been pretty exciting for me last night I noticed that I am able to
wiggle the toes on my right foot. The only bad thing is that I can't do it
no more has this ever happened to any of you. I think they might just be
fatigued. I sure hope that I'll be able to show my physical therapist.
Another thing is that I could straighten my legs out but they only hold out
for about 10 seconds and its partially because of tone. But hey I'll take
it. Anyway thats been my day today I'm just hopeing that I could get on my
feet again and as soon as posible.