Re: for Bill Kennedy, "weird tone reflex"

Karen Luglio (tootsie(AT)voicenet.com)
Fri, 25 Apr 1997 14:52:09 -0400 (EDT)

At 04:29 AM 4/25/97 -0400, you wrote:
>In a message dated 97-04-24 21:06:37 EDT, tmic-list(AT)eskimo.com writes:
>
><< And lately I have been getting weird tone
> reflexs that I can partially controll. Like when ever i make a movement
> after being in a position for about a minute my legs will tone and I can
> controll the way I want them to move. I was wondering if there were any
> people with similar things that happened to them. And if so I'd like to
> here from them . I don't know If its good or bad or just normal. And I'd
> also would like to here from other people who had a good recovery over a
> period of maybe 6 months or so. But befor that there wasn't much going on
> and they felt like it might never come back. I know it might seem early
> the doctors say but if I will recover when should I expect it and are there
> any signs you could see befor it happens to give me some hope. It just >>
>
>
>
Dear Bill, Beth, etc.

When I read Beth's response to Bill: The "weird tone reflexs" you speak of
>in your letter occured in my case as well. Many times these "tone reflexs"
>would come at any given time, and would be followed by some form of
>controled movement. These weird tone reflexs would not occure in synergy
>with other groups of muscles. for instance my thigh muscles would flex
>(spasm) yet the other muscle groups associated with normal synergy would not
>work. It would almost appear to be an alien under the skin, rigorously trying
>to get out."

This was explained exactly the way I felt as well during the first three
months. The "alien under the skin" is just the way it appears. These are
called "fasciculations" which is a fancy word for involuntary contraction
or twitching of muscle fibers under the skin. I used to notice these even
more after my aquatic therapy or any exercise. Very encouraging story about
the man who had improvements up to 18 months. This has given me a lot of hope.

Regards,

Karen