Re: Acute Transverse Mylitis(spelling)

Lori Gasik (lgasik(AT)kiwi.dep.anl.gov)
Thu, 24 Apr 1997 17:10:44 -0500

>At 10:01 AM 4/23/97 -0600, Jean Loyning wrote:
>>Hello,
>> I hope I'm doing this right. I'm looking to talk to any one with this
>>disease, or someone who has info
>>about it. I have been diagnosed with this, and have also had diagnosis of
>>Multiple Sclerosis. So as you
>>can guess I'm alittle confused and am trying to find out as much as I can
>>about both. Multiple Sclerosis
>>was easy Acute Transverse Mylitis hasn't been.
>
>Hi Jean,
>
>Yup, you did it right. When someone sends a message to the list address,
>"tmic-list(AT)eskimo.com", then everyone who has subscribed to the list
>receives a copy of the message. There are about 110 people on the list,
>either people who have TM or know someone who does.
>
>I was diagnosed with acute transverse myelitis 8 years ago when I was 21. A
>MRI showed something at C1-2 level. Because of the high level, I am totally
>paralyzed from the neck down and dependent on a repirator to breathe.
>
>If you haven't seen it already, check the web page for more information.
>
>Jim Lubin
>jlubin(AT)eskimo.com
>http://www.eskimo.com/~jlubin
>----
>A searchable archive and more TM information is available at:
>Transverse Myelitis Internet Club
>http://www.eskimo.com/~jlubin/disabled/tmic

Hi i don't know if i'm doing this right but my name is bill kennedy. I'm
16 years old and I was diagnosed with tm 3 months ago. My initial symtoms
were bad back pain then loss of feeling then eventually no motor control
below the waist. As of now I have regained partial feeling all through my
body and movement of my hips. And lately I have been getting weird tone
reflexs that I can partially controll. Like when ever i make a movement
after being in a position for about a minute my legs will tone and I can
controll the way I want them to move. I was wondering if there were any
people with similar things that happened to them. And if so I'd like to
here from them . I don't know If its good or bad or just normal. And I'd
also would like to here from other people who had a good recovery over a
period of maybe 6 months or so. But befor that there wasn't much going on
and they felt like it might never come back. I know it might seem early
the doctors say but if I will recover when should I expect it and are there
any signs you could see befor it happens to give me some hope. It just
seems like the ones that do recover always recover inshort periods of time
and the others are very limited from what I see. All I want in life now is
to walk and if I can't have that I don't know what i'll do. please send me
some information on these things I just asked about