Re: Acute Transverse Mylitis(spelling)
Paul and Jean Loyning (ployn(AT)trib.com)
Thu, 24 Apr 1997 08:43:51 -0600
Hello,
I'm sure glad you took the time to answer some of my questions. I have
been trying to combat whatever I have with excercise and diet. I have to
be honest the docters were not very helpful to
me with any answers or explanations about how either disease (M.S. or T.M.)
how they affect you if
there is any drugs that help, or if you should be doing something else to
help yourself. I'm 37,and
have 4 children, my husband,myself, and my husbands parents, ranch. We
live about 25 miles from the nearest town of any size. When I started
having my problems I thought I had a back injury, so I
started with a chiropractor, he assured he could help, but after 2 weeks,
and my symptoms were
getting worse, I consulted a doctor and he sent me to a neurologist, the
first one I saw took MRIS
and they proved normal, then he did a spinal, Ican't remember what exactly
he found, but it was a
very high level of protein. (I think). I was told by him I was in the
beginning stages of M.S. and there
was nothing he could do for me, to go home and watch my diet and excercise,
and wait for something else to happen. He did put me on Amantadeen
(spelling) for fatigue, but thats about it. I then after about 3 months
decided to consult another neurologist, and seek another opinion. The
second neurologist spent a total of 15 minutes with me, told me I had Acute
Transverse Myelitis. So $150
for 15 minutes and a differant diagnosis. I'm really confused but not
feeling bad enough to seek another
opinion, so I'm just waiting for something else to happen. I can get no
insurance, so I try to just stay
away think positive, and keep healthy. I battle fatigue and numbness,
memory loss, its been hard
because even if I don't have it very bad it has changed my life and my
families life tremendously. I took
a very active role in the ranch and this has changed everything. Thanks
for your time. JEAN
----------
> From: James Lubin <jlubin(AT)eskimo.com>
> To: tmic-list(AT)eskimo.com tmic-list(AT)eskimo.com
> Subject: Re: Acute Transverse Mylitis(spelling)
> Date: Wednesday, April 23, 1997 3:05 PM
>
> At 10:01 AM 4/23/97 -0600, Jean Loyning wrote:
> >Hello,
> > I hope I'm doing this right. I'm looking to talk to any one with this
> >disease, or someone who has info
> >about it. I have been diagnosed with this, and have also had diagnosis
of
> >Multiple Sclerosis. So as you
> >can guess I'm alittle confused and am trying to find out as much as I
can
> >about both. Multiple Sclerosis
> >was easy Acute Transverse Mylitis hasn't been.
>
> Hi Jean,
>
> Yup, you did it right. When someone sends a message to the list address,
> "tmic-list(AT)eskimo.com", then everyone who has subscribed to the list
> receives a copy of the message. There are about 110 people on the list,
> either people who have TM or know someone who does.
>
> I was diagnosed with acute transverse myelitis 8 years ago when I was 21.
A
> MRI showed something at C1-2 level. Because of the high level, I am
totally
> paralyzed from the neck down and dependent on a repirator to breathe.
>
> If you haven't seen it already, check the web page for more information.
>
> Jim Lubin
> jlubin(AT)eskimo.com
> http://www.eskimo.com/~jlubin
> ----
> A searchable archive and more TM information is available at:
> Transverse Myelitis Internet Club
> http://www.eskimo.com/~jlubin/disabled/tmic
>