I'm sorry if I started something that would split a group of caring and
supportive people into the more fortunate and the less fortunate. I
don't think there is anything fortunate about TM or any life-altering
illness. I hope that I will walk without braces and crutches someday
and never need to use them again. For me, minor problems like
intestinal impactions brought me to within hours of death last fall
(intestinal perforations). When that happened to me last week, it was a
minor problem that could've been a major problem. You're right, pulling
out your own IV is not a rational decision, but I was in pain and
distraught.(plus, as part of my medical training, I start and pull IV's
all the time) Now, I'm in a situation where I'm too embarrassed to call
my doctor if anything comes up. My marriage is on the rocks as a result
of my illness. I could go on but I'm not going to. As I see it, all of
us have varying degrees of TM but it's not the the physical disability,
it's also how it takes your life from you and everyday is a struggle to
get a little piece back. Hope everyone is well.
Kara
P.S. When my mom wanted me to get the handicapped parking sticker, I
rolled my eyes and gave her a piece of my mind. When she asked if she
could keep my wheelchair in the back of her car is when I let her know
how extremely disappointing is was for me to hear her talk like that.
Just thought I'd clarify.