Re: Tegretol/bladder

Aurore Bleck (ableck(AT)nas.edu)
Thu, 10 Apr 97 09:09:00 EST

Barbara,

Do you live where you have access to a good acupuncturist? Acupuncture is
excellent for neurological problems, so you could see if it would help the
ringing in your ears, numbness on the head and in the eye area, flashes,
twitching and spasms associated with the eyes. Since you want to limit
your medications, I'd say it's worth a shot. Acupuncture works well in
adjusting systems, which might be the ticket since the doctor says your
nervous system is possibly more sensitive.

I had a lot of bladder problems--initially not being able to void at all,
urine retention (I cathed for months), urgency, frequency, and leaks. Now
I still have urgency (less severe), occasional frequency, and rare leaks.
I also have interrupted flow, especially in the morning, an improvement to
my way of thinking over urine retention, because now I can feel the
retention and focus on a second or sometimes third elimination. I'm sort
of amazed your doctor didn't think your bladder problems were
TM/neurologically based.

I'm supposed to do the kegel exercises and check back with my primary care
physician (brought this up at my physical recently). She might refer me to
a urologist. When I was in the hospital, they sent in a urologist to
consult--he said my situation was still changing so much that it wasn't
worth testing me to see what was going on, but that it might be worthwhile
after I was more stable (I thought he was great, with a very sensible
approach, unlike the gastroenterology team that first wanted to track
barium through my system until they realized it wouldn't clear my system
since my intestines weren't working and then wanted to stick one of those
cameras in me--I said no, it's neurological anyway--they were quite
disappointed but had to admit it probably was neurological).

Best,
Aurore
ableck(AT)nas.edu