Reading your message I was struck by the similarity of your condition and the
TM attacks that have hit me. Like yourself I was quickly hit by initial
symptoms, treated in hospital, then released. 3 months later a relapse from
which I am just about better now. My only symptom now is pins and needles
feeling and a 'hot' area in my side..feels like I'm having deep heat rub
applied,
I have to be careful with hot baths 'cause my right half can't feel 'true'
temperature, but anything cold burns like hell. Like yourself I have none of
the pain described by others, and now I have full mobility and co-ordination,
I never did have any urinary problems. I don't take any regular medication
however I have been having alternative therapy including 'Bowen' treatment and
magnatherapy. I promised the group an update on these. While I am much
improved I can't isolate this as a direct result of any of the two. I will say
that since using the magnatherapy devices (mattress and in-soles) I have
needed less sleep because the quality of sleep is much better....I would say
try these alternatives but don't expect miracles, after all if they were to
achieve miracles for us I'm sure they would be better known and in widespread
use.
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From: Kent Skov
Sent: 08 April 1997 04:06
To: tmic-list(AT)eskimo.com
Cc: Julienne(AT)kentskov.msn
Subject: Newcomer
Hey Everyone!
Very glad to learn you are all here and helping each other. Much like Kara,
my TM began 5 months ago - first urinary retention (did you ever think you'd
be discussing your pee habits with the world?), then numbness in the legs,
then sudden "electrical" pain down my back, and, within hours, paralysis from
the waist down. Used and abused for 10 days in the hospital, I begged for
rehab and recovered well - until I had a complete relapse (which "doesn't
happen") in mid-Feb. They ordered me back to the hospital and I said no - did
you know that you could say no to doctors? I didn't. Sure enough, they set
me up with my IV Solumedrol at home, and now I'm starting from scratch -
learning to walk for the second time in six months. Questions: I have none
of the pain that everybody's talking about, just the numbness from the waist
down and that lovely Saran-Wrap-wrapped-tightly-around-my-legs feeling. I
know MS responds negatively to heat. Anybody experience that with TM? I am
most interested in the ups and downs we all experience, seemingly for no
reason. I can't detect a pattern. I'm trying herbs, vitamins, Chinese meds
as well as Zoloft and Vicodin. Massage keeps the circulation going. I too
have experienced slow healing of cuts on feet. They say mine is post-viral.
My question is, how do they know the virus is gone? How do we turn off an
over-active immune system? Why are our bodies attacking ourselves?
Love to all, especially Jim
Julienne