Re: Aching Legs & lots of mail &.....
robert e parker (bob(AT)dragon7.demon.co.uk)
Sun, 30 Mar 1997 23:05:30 +0100
In message <199703300523.VAA19831(AT)ivic.ivic.net>, Deborah Capen
<dcapen(AT)ivic.net> writes
>
>
>
>> Linda wrote:
>> I just could not believe it when I read some messages from this list that
>> people had the *same* pain in the *same* area on their legs......it felt
>the
>> *same*.....they described it the *same* way.....some are taking the
>*same*
>> medications......have the *same* limitations, etc.
>>
>> I would like to bring up one subject to all.........several people have
>left
>> the list recently stating that they have already heard much that is now
>being
>> discussed, etc. I know from reading the archives of messages when the
>list
>> started that many gave their histories and similarities, medications,
>etc.
>> were discussed.
>>
>> I would hate to think that I.....or any other new subscriber......was the
>> reason that people are leaving! I realize there has been a lot of mail
>> lately.....which has been extremely helpful to me......but is this not
>the
>> reason for the TMIC list??
>>
>> I honestly would like to hear if some of the comments and emails of late
>are
>> not the type that are to be expected. I know when several people join at
>> once, they are eager to hear all and tell all.....as was/is the case for
>me!
>>
>> I also know that some people do not like to receive the volume of email
>that
>> this list.....or others.....can generate and may like to just read the
>> messages from the web site.
>>
>> Thanx.....just want to make sure I'm not *ruffling any feathers* here!!!!
>;-)
>>
>> My best to all!
>> Linda
>>
>Linda,
>
>I still believe that this is an electronic support group for people with
>Transverse Myelitis, of varying degrees of severity, but all of us are
>going through it. Maybe some people can't handle reading about it every
>day, and want to get on with their lives. Others may have recovered or
>finally been able to cope with it, and no longer need "support". Whatever
>the reasons may be, it's okay. We do gain knowledge in "comparing ailments
>and medications". I, for one, feel better knowing that there are lots of
>people out there that are getting along. Some days, I am so disappointed
>that I woke up and have to face another day, and then I get my mail, and
>think, "if they can handle it, then I can too".
>
>As far as the "problem" of taking too much online time to sort through the
>mail, I have no problems. I log on, grab my e-mail, am offline within one
>minute, then read my mail at my leisure. Do not have to be online to read
>it.
>
>I do not plan to "unsubscribe", as long as Jim Lubin is gracious enough to
>keep this list going, I will continue to read the mail. I gather lots of
>information, so with each visit to my neurologist, my time with him is well
>spent. I am still trying to get him to agree to let me have physical
>therapy, because it seems the more I do, the more damage I am doing. I
>think as long as my insurance company pays for it, I should be able to have
>it. So far, it looks like everybody else here still has P.T.
>
>Anyway, I am rambling again, so time to sign off. "Keep those cards and
>letters coming".
>Debbie
>
HELLO, DEBBIE. IT is ROBERT here, keep on rambling :-) i agree with
your post, i have had ATM for almost three years and until i found this
group i only new one other person with ATM. In the UK it is not widely
known or it is dx as MS, BECAUSE there are no cures for ATM i think some
people who have had ATM for a number of years must get really fedup with
reading the same old problems that ATM brings, but the old hands are the
only people to help the new ATM sufferes get through all those
unanswered questions we all have. I will not "unsubscribe" as you said
as long as our good friend JIM LUBIN is able to keep this self help
group going. I had better stop rambling :-)) as well. best wishes AND
regards..... ROBERT.
--
robert e parker