Re: Aching Legs & lots of mail &.....

Deborah Capen (dcapen(AT)ivic.net)
Sat, 29 Mar 1997 21:17:45 -0800

> Linda wrote:
> I just could not believe it when I read some messages from this list that
> people had the *same* pain in the *same* area on their legs......it felt
the
> *same*.....they described it the *same* way.....some are taking the
*same*
> medications......have the *same* limitations, etc.
>
> I would like to bring up one subject to all.........several people have
left
> the list recently stating that they have already heard much that is now
being
> discussed, etc. I know from reading the archives of messages when the
list
> started that many gave their histories and similarities, medications,
etc.
> were discussed.
>
> I would hate to think that I.....or any other new subscriber......was the
> reason that people are leaving! I realize there has been a lot of mail
> lately.....which has been extremely helpful to me......but is this not
the
> reason for the TMIC list??
>
> I honestly would like to hear if some of the comments and emails of late
are
> not the type that are to be expected. I know when several people join at
> once, they are eager to hear all and tell all.....as was/is the case for
me!
>
> I also know that some people do not like to receive the volume of email
that
> this list.....or others.....can generate and may like to just read the
> messages from the web site.
>
> Thanx.....just want to make sure I'm not *ruffling any feathers* here!!!!
;-)
>
> My best to all!
> Linda
>
Linda,

I still believe that this is an electronic support group for people with
Transverse Myelitis, of varying degrees of severity, but all of us are
going through it. Maybe some people can't handle reading about it every
day, and want to get on with their lives. Others may have recovered or
finally been able to cope with it, and no longer need "support". Whatever
the reasons may be, it's okay. We do gain knowledge in "comparing ailments
and medications". I, for one, feel better knowing that there are lots of
people out there that are getting along. Some days, I am so disappointed
that I woke up and have to face another day, and then I get my mail, and
think, "if they can handle it, then I can too".

As far as the "problem" of taking too much online time to sort through the
mail, I have no problems. I log on, grab my e-mail, am offline within one
minute, then read my mail at my leisure. Do not have to be online to read
it.

I do not plan to "unsubscribe", as long as Jim Lubin is gracious enough to
keep this list going, I will continue to read the mail. I gather lots of
information, so with each visit to my neurologist, my time with him is well
spent. I am still trying to get him to agree to let me have physical
therapy, because it seems the more I do, the more damage I am doing. I
think as long as my insurance company pays for it, I should be able to have
it. So far, it looks like everybody else here still has P.T.

Anyway, I am rambling again, so time to sign off. "Keep those cards and
letters coming".
Debbie