I've stabilized since my Aug 96 onset and have been observing and
documenting my life style changes. The following are some of my observations.
Take them with a "grain of salt", since we all have different situations to
deal with.
A t-7 "lesion, inflamation" has meant much less of a mobility
problem then others. Nether the less, except for childbirth, I have never
had to deal with so many lifestyle changes in such a short period of time.
Driving was my first challenge. Thank goodness i live in the
country! If I lived in the city I'm sure I would have caused an accident.
I could not determine my foot pressure and had to relearn the gas and brake
pedals. Really scared myself a few times.
The next "phase" was going out in public. Not work related, they were
very supportive. I', talking about theaters, baseball parks, malls. I was
not confident unless my husbands' arm was under mine. That was a real
learning process and it took awhile. To cross a parking lot alone was a
major accomplishment. Now, I only shop when I feel really well. I'll wait
for the parking space close to the door(no I don't have a handicap permit).
Mail ordering is a major part of my current life-style.
Another area that's really changed is social interaction. Our
close friends invite us with the understanding that I might not be able to
show up at the last minute. "Have to" functions have fallen by the wayside.
My husband attends and gives "regrets", from me. I won't push , I count
myself as too important.
One more significant area that I've had to deal with is our son.
He was home 3 months after my onset. He's in the Marines and has definetly
proved he's a tough guy! But he really was disturbed by my situation.
Luckily, for me, he was able to verbilize his fears and we discussed them to
death! I really am concerned what you all are doing with the "little ones"
that have to deal with such life altering situations. Although most
children are more aware of disabilities then when I was a child, it must be
really frightening for a parent being disabled.
Sexual function is certainly a major concern for those of us with
limited ability to perform. I , for one, am glad the topic is being
addressed. I don't think it's a Gentlemans only subject. That is unless
it's two gentlemen! An understanding mate is a blessing. I find that
tacticle stimulation doesn't work as well as mind stimulation. That takes
more work on my husbands' end. Actually, after 25 yrs of marriage, it's
rather interesting!
I know this is long & I apoligize but I don't contribute often,
So, I beg your patience.
Shoes, slippers etc. are my main concern. My feet are so very
sensitive! My job requires specific foot wear. Some days I conform and
some days I don't. I've found that L.L. Beans clogs a comfortable
alternative. When questioned by "authority" about my foot wear, I just say
"I'm having problems with my feet." So far, it's worked.
Changed slippers last week and almost killed myself! Went from
smooth leather(shuffle along) to rubberized soles. Is't amazing how the
simpliest thing get really important!
Looking forward to dealing with my garden this Spring and Summer.
It is a major passion of mine and I intend to conquer what ever problems I
encounter. Have scaled down my plans, but I'll be out there!
Happy Spring,
Donna