Re: Suggestion for List Improvement

James Lubin (jlubin(AT)eskimo.com)
Sat, 22 Mar 1997 10:30:56 -0800

At 12:01 PM 3/22/97 -0600, Ed Kuykendall wrote:
>I'm not sure who's maintaining this site, so I'll blast this suggestion
>to everyone. I recommend adding a simple search capability to the
>message archive, so that, for example, when the doc says he wants to
>start me on the newly approved Zanaflex to replace the Baclofen, I can
>search the archive for Zanaflex. The current 'sort by subject'
>capability doesn't quite do it!

I'm the one who maintains the list and the web sites for the list and the
Transverse Myelitis Association. I've been looking for sometime of search
program that I can add. I just learn stuff as I go along.

BTW, it's time to renew my subscription to eskimo.com next month. If anyone
would care to send me some money to help pay for it I would really
appreciate it. Archiving the messages has just about used up my 10Mb so I
have to pay for more storage. If I pay for 2 years ($120) it comes out to
$5/month. This is not my internet dialup connection, it's just for my web
site, email and mailing lists.

>Also, I saw my neuro yesterday. He wants another MRI to verify that
>things are stable. I hate those - I found out I was claustrophobic the
>first time - had to abort the procedure. The second time I was
>accompanied by an anasthesiologist who put me in the right frame of
>mind. Good thing - because they had me in that damned tube for 2.5
>hours! This time, it should be a short session, so I'm going to try it
>with just Valium. Anyone have any fotter to add to this?

You don't like being in a tube listening to that pounding noise? <grin> The
first time they told me to wiggle my toes if there was a problem; sure, I'm
paralyzed from the neck down. The second and third time I started falling
asleep.

>I mentioned this list to my neuro, and he is extermely interested in
>joining. He didn't realize there was such a forum. How does the group in
>general feel about docs peeking in? I have noticed a lot of doc-bashing.
>Maybe it would be good for them (the docs) to see how real people
>actually feel when they are not in the office!

That would be great! It would be great to have some docs on here.

+--------------------------------------------------------------+
|Jim Lubin |email: jlubin(AT)eskimo.com |
|PO Box 82433 | fax: +1 (206) |
|Kenmore, WA USA 98028-0433 | http://www.eskimo.com/~jlubin |
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