Re: My fireworks!

Weger(AT)aol.com
Fri, 21 Mar 1997 17:12:23 -0500 (EST)

Linda what caught my eye first was your file title, "My fireworks". For the
past 4 years my wife has been calling my "attacks" - fireworks. I have
changed neurologists a number of times due to moving, insurance and
frustration. 2 years ago I was diagnosed with MS and my current neurologist
(an MS specialist) does not believe have MS but thinks its related to the TM.

My initial attack occurred at age 7 in 1963. Much of the time I do not
remember, which is probably good. I was isolated because they did not know if
I was contagious and became parlayed in 24 hours At its worst, I only could
move my eyes. Recovery took place over a 6 month period and I was left with
damage to my right leg, and bladder/bowel problems. And lived a pretty normal
life.

As I stated previously, I have been displaying MS symptoms for about 4 years
but MRI and all other hard data has been negative. During this time, I have
been on amitriptyline, vicodin, and recently tegretol. Finally, the tegretol
seems to have taken much of my pain away. I am still having difficulty with
balance, my right leg has become much worse and I am wearing out my shoes
about 6 weeks from dragging my leg.

I have found that much of the materials that the MS Society sent me when I
was told that I had MS, was beneficial. I do not mean the diagnosis info but
rather the Knowledge is Power series.

I have stayed on this list since its origination because of my personal
interest in long term problems associated with TM. I have read a number of
journal articles on MS occurrence after TM and it ranges from 10% to 50%. For
me, MS symptoms is more annoying than anything else. Sometimes I feel great
and other times I feel like .... Dont get me wrong, it has interfereers, I
cant complain too much.

My own personal feeling is that what I am suffering from is related to my
bout with TM. It was quite a mystery then and it appears to remain a mystery.

Hoping you the best

Al