> Julie and Joan, I would like to help you with the compilation list of
> neurologists (sp?) and clinics. But, I wonder. Don't you want to
> narrow that to neurologists who working with or specialize in TM? For,
> without that focus, I fear there is a larger population of neuros who
> can't afford the time in TM because they have chosen some other area to
> specialize? Please provide clarification on what you need. For the
> Baltimore MD/Washington D.C region, I will do what I can to satisfy your
> requests. -george
George -
Thanks a lot for your help!
You make a good point! Initially, I'd thought about narrowing the search,
but then I wondered if by doing so, we might actually *exclude* some neuros
who could help us. The only way I can think of narrowing the search is to
call every neurologist's office in the country and to ask the question, "Does
your neurologist specialize in, or have any knowledge of, Transverse
Myelitis?" None of us can afford to do this, and even we could, I wonder if
we would get an accurate response from the office staff?
By sending a questionnaire to every neurologist, we will know that at least
we covered all our bases. (My husband & I are willing to cover the cost of
mailing and deduct it as a charitable contribution. Hopefully the TMA will
have federal non-profit status by that time.) I hope to capture the
attention of the office staff by marking the envelope with a message printed
on a brightly colored label. Also, since I have a color printer, I can print
the message "PLEASE HELP" (or some such thing) in bold red letters at the top
of the questionnaire. Hopefully that will prompt the neuro to complete it.
I don't know. What do the rest of you think? Having never attempted such a
project, I don't know what would be the best way to approach it. I'm
certainly open to all suggestions.
One thing I forgot to mention in my original message is that BEFORE any
questionnaires go out, I will post the final compilation to TMIC and ask for
feedback.
Again, thanks for your help!
Julie