Re: Your help is needed!
George (symbiotc(AT)erols.com)
Sun, 16 Mar 1997 08:59:48 -0500
JoolieP(AT)aol.com wrote:
>
> This is another duplicate message of one that I sent on Mar. 10. Should the
> original ever be found and posted, I apologize for the duplication.
>
> Hello again, friends -
>
> In an effort to gather more information about TM, Joan D and I have
> volunteered to help Deanne Gilmur, President of the Transverse Myelitis
> Association, gather a list of neurologists in private practice, as well as
> neurology clinics at university hospitals, across the U.S. and Canada, and to
> mail them a questionnaire about TM. Joan will help me to collect the
> questions, and I will compile them and send out the questionnaire.
>
> This is an enormous undertaking, and we need your help!
>
> 1) If you are able to donate time to gather names and addresses of neuros
> and clinics across the country (i.e., search the Net, look up names in phone
> books, forward the names and addresses of any neuros you’d recommend), please
> let us know. If you are forwarding the name of a neurologist you’d
> recommend, please include his or her phone number so that we can build as
> complete a database as possible.
>
> 2) Please submit one or two questions you would like to ask a neurologist
> about TM. Some of you will want to submit more questions, but we ask that
> you keep them to a maximum of 5. Many questions will undoubtedly be
> duplicated by others, and we ask that you help us reduce redundancies by not
> asking too many questions.
>
> If each member of TMIC submits one or two questions, I believe that we will
> be able to compile a list of the 10-20 MOST IMPORTANT questions. If we make
> the questionnaire any longer than that, I believe it will be too much for
> most neurologists. We don’t want to "flood" them -- we want to get their
> cooperation and make this exercise as "painless" as possible (ggggggg).
>
> Please submit your questions either to Joan or me at the following e-mail
> addresses:
>
> Joan: <jokerd1(AT)juno.com>
> Julie: <jooliep(AT)aol.com>
>
> We welcome any other ideas or suggestions you may have.
>
> Thanks for your help!
>
> Love and cheers,
>
> Julie P
> <jooliep(AT)aol.com>
>
> P.S. I will be off-line from Mar. 20 to the end of April, so I will be
> unable to receive messages during that time. I will, however, stay in touch
> with Joan by phone, so please feel free to send any messages to her e-mail
> address.
Julie and Joan, I would like to help you with the compilation list of
neurologists (sp?) and clinics. But, I wonder. Don't you want to
narrow that to neurologists who working with or specialize in TM? For,
without that focus, I fear there is a larger population of neuros who
can't afford the time in TM because they have chosen some other area to
specialize? Please provide clarification on what you need. For the
Baltimore MD/Washington D.C region, I will do what I can to satisfy your
requests. -george