Re: TMA

George (symbiotc(AT)erols.com)
Sun, 23 Feb 1997 18:51:51 -0500

Deborah Capen wrote:
>
> ----------
> > From: Srulyosef(AT)aol.com
> > To: tmic-list(AT)eskimo.com
> > Subject: TMA
> > Date: Sunday, February 23, 1997 6:29 AM
> >
> > Well, after over three weeks of not having a computer, I am back on line.
> I
> > just finished reading about a month's worth of e-mail and glad to see the
> > tmic is very active. I would first like to thank everyone who has taken
> the
> > time to return their TMA questionnaire. We are getting some very good
> > information from people. Now that I have my computer again, we will
> start to
> > enter the data within the next couple of weeks. If you have not returned
> > your questionnaire, I urge you to do so. If you are looking for some
> type of
> > motivation for filling it out -- read all of the postings to tmic. It is
> > hard to imagine that there is a doctor or hospital that has contact with
> more
> > people with tm than we do through the tmic and TMA. We have a great
> > opportunity to look at the questions that are being raised by many of
> you.
> > We also have an opportunity to communicate this information to doctors
> --
> > which is going to help them think about "how" they are thinking about tm.
> > Finally, if you are new to the tmic and have not yet heard about the
> > Transverse Myelitis Association, please send me your name, address and
> phone
> > number (optional) and we will get a newsletter and questionnaire to you.
> We
> > will also add you to our membership list so that you will recieve future
> > newsletters and other mailings. Jim has posted the newsletter and
> > questionnaire through the tmic. If you have that copy, please fill out
> the
> > questionnaire and feel free to either send it to me by mail or
> > electronically. If you file it electronically, please be sure to
> carefully
> > number your responses, so that the information can be coded properly.
> Joan,
> > thank you for posting the message for me. And Jim -- thanks a ton for
> your
> > work on the TMA internet site. Our best to everyone. Pauline is holding
> her
> > own. All of these postings relating stress to intensified symptoms are
> right
> > on. Pauline is in the process of completing her master's degree (in
> > education -- she's a kindergarten teacher) and it has been a strain on
> her
> > body as much as on her mind. I'm not sure how you eliminate stress from
> your
> > life -- but if you have techniques and strategies for dealing with it
> when it
> > happens, you are way ahead of the game.
> > Take good care of yourselves,
> > Sandy
>
> I would like to know how to go about receiving a questionaire to fill out,
> and where to write to receive the newsletter. I only signed on a few weeks
> ago, and am in my second month of enduring this TM illness. So, of course
> I would be interested in any more information that is available. Thank you
>
> Debbie
> >
Sandy and Jim,
I have been toying an idea for some several weeks about volunteering my
time. In particular, I have access to computer professionals. Sandy,
could I see a rough copy of what you have in mind for the questionaire?
Are you planning to build a database? Jim, does TMA have one or would
like a database or other technical support? -george