My name is Sandy. I woke up on Jan. 13/97 and my left side was numb. Within
an hour I could hardly walk, due to numbness and lack of equilibrium. I
was told I had TM a week later, after an MRI. My Neurologist just told me to
wait to see if it will go away. Thats all. I thought that myelitis was maybe
like a cold that would just go away and I would be better! :) After
looking up Myelitis on the internet and finding this tm club, I now have
some information and I am so grateful for the words that everyone writes
here. I will see my neurolgist for the 2nd time on Thursday, and I hope to
better get some more info from him!
I keep thinking that I will get better quickly. That one day I will wake up
and I won't be numb anymore, that my good (not numb) knee won't give out all
the time, and that my energy will come back. Anyone ever have this happen?
Or should I probably expect to be numb for a while - and how long? Do some
people with tm recover inside a year?? Somedays I feel quite good, not too
much pain, so I guess that is the days I think that I will get better. I
can walk, drive and mostly do things, so I am very lucky to be able to do
these things. If I run a finger lightly down my numb arm, I can feel my
finger on my arm, but I don't feel hot or cold or a pinch. Does the fact
that I can feel a light touch mean I may be getting better? Do others
experience the same thing? Also, half of my foot and the two smallest
toes hurt alot,or are even more numb. Does pain mean I may be getting
better? Are there things that I will go through that will be a sign that I
am recovering? I would love to have some kind of sign that mean that this
may soon be over. To anyone who has gotten better - are there any signs
that mean recovery is near?
Well, I wanted to say 'Hi' to everyone finally, as I have been reading the
helpful words you all write for the last couple days and thought I might one
day help someone else, as you have helped me. Just knowing that I am not
alone in this is a great comfort! :)
Thanks.
Sandy