Re: More questions

spiels(AT)catamaran.netwave.net
Fri, 14 Feb 1997 14:11:59 +0000

Barbara,

I read your 2/14 note where you described a shade being lowered over
your vision. Have you had an MRI of that area?

I had optic neuritis, which resulted in that type of permanent
vision. It is like having 75% of the dots being taken out of a tv
picture tube.

Bob Spielman

> From: JHarper33(AT)aol.com
> Date: Fri, 14 Feb 1997 09:12:33 -0500 (EST)
> To: tmic-list(AT)eskimo.com
> Subject: More questions
> Reply-to: tmic-list(AT)eskimo.com

> It's been right at a year and a half since the onset of TM for me, and
> I've had improvement in many areas, especially mobility, but one area (pain
> in back) that is worse, and new symptoms: sporadic numbness in new places,
> eye problems (flashes, blurriness, grey or "shaded" areas, all sporadic), and
> the "jolt" in the back of the head and other odd sensations there, which I
> mentioned on the list before (thanks, everyone, for the responses to that. It
> REALLY helped to know I wasn't the only one with that!) Most recently I've
> had ringing in one ear, but that may be due to a new medicine (Tegretol). I
> saw the neurologist last week and he said we could pursue the possibility of
> MS, or try different drugs and see if anything helped (which I've resisted
> til now). He said he thought the TM had "altered" my nervous system and
> that's why I was having new, weird, off-and-on symptoms.
>
> Has anyone else experienced new symptoms like this long after the
> original TM?
> Are there any other diseases it could be, and could anything be done about it
> other than trying different drugs?
>
> I did ask about stroke and trans-ischemic attacks. In a Reader's Digest
> article in Nov. there was an article about those. I read about it while in
> the opthamologist's waiting room, and it described perfectly a sensation I'd
> been having: that of a shade being pulled over the vision. I hadn't quite
> known how to describe it. It's only for seconds at a time. I asked the neuro.
> about that; he didn't think that was what I was experiencing.
> Thanks!
> Barbara
>