[TMIC] Rollerblading, Dancing after ATM C1-C2
FlySoloDi(AT)aol.com
Thu, 08 Jul 1999 11:26:24 -0700
After lifting heavy heavy heavy furniture and spring cleaning I was very very
sore in the arms and neck on March 16. Then I went into the Jacuzzi twice.
Big mistake. This lasted for 3 days. I went to my Doctor on March 18 she
said take pain medicine and sent me home. That night my arms and hands
started to turn in like I had CP. The next day I knew somthing major was
happening. I called my Doc and went to see her that day. She was out to
lunch and another Doctor saw me. What a joke. I was in very bad shape and
he got on the phone to her laughed and said I was just fine. In three hours
I could not move my foot, my bladder quit working and I was going down. My
Doctor saw me and sent me to the emergency room. The neurologists were
waiting for me but the triage nurse decided I could sit outside waiting for 4
hours till I saw the ER Doctors. They immediately called the neurologists
who were waiting for me. Sometimes the hospitals make you want to scream .
I had all the tests MRI etc that night. They immediately started me on
steroids. I was in so much pain that at the time I did not understand what
TM was or cared. But the next 9 days on steroids I was in the neuro ward.
My lesions were in the C1 and C2 and brain stem. Doctors did not tell me but
they expected that I might be a quad on a vent or die. I am not sure why I
came thru with flying colors but now I am rollerblading, dancing, working out
etc. I still have funny feelings when I am stressed tired etc. But in my
past I had cancer, some heart problems and migrains guess I am just a
special lucky person to get TM too. Rolling of my eyes. laughing. I wish
you all the best My e-mail is always open to anyone needing help or
encourgement. I also had the tight band but it went away completely. I
have to admit that this disease scares the hell out of me. Scared me more
than cancer. Sometimes it seems so strange when I am out on the dance floor
dancing pretty hard to old time swing rock & roll salsa etc. that no one
else in the club knows how close I came to not be able to the one thing I
love the most dancing. I get scared thinking about another bout. The
doctors took another MRI and said it was completely cleared. That it does
not show lesions and that the swelling was completely gone. But my faith in
the medical profession is not 100 percent. Take care Good luck to everyone.
When I read the stories 4 months ago when I first got hit with TM they
scared me. Now they just partially scare me. But it helped knowing other
people got this disease and kept on going with their lives. You are all
hero's in my book. ps I was on a walker then crutches then one day thru the
crutches on the floor and pulled out my rollerblades. My uncle who is a
doctor thought I was nuts . Maybe I am but a happy rollerblading nut.
D