Re: [TMIC] Subject: [TMIC] Re: Kim's story

Robert and Marabeth (74541.2151(AT)compuserve.com)
Mon, 5 Jul 1999 13:46:42 -0400

Angela, if your neuros decide to wait till TM hits your brain, you might
well be in a wheelchair by then. Or worse. (Hope not). Not everybody has
attacks above the neck. Sharon M. in Arizona has had exacerbations in the
brain (am I correct, Sharon..??) and is also on interferons, and very glad
she is.
Glad to hear they're willing to get you started on interferon, either beta
1a or beta 1b, and the sooner the better says I, to prevent any further
attacks, anywhere along your CNS. Do keep me posted on this.

Bobby Jim

------on 4 July 99, you wrote: Dear Bobby Jim,
I wish that neurologists could agree. I was told that my TM was unlikely
to turn into MS as there were no lesions on the brain or brain stem. My
neuro is however considering me for beta interferon because I have had two
attacks of myelitis.
Angela
-----Original Message-----From: Robert and Marabeth
<74541.2151(AT)compuserve.com> To: TMIC <tmic-list(AT)eskimo.com>
Date: 01 July 1999 16:05 Subject: [TMIC] Subject: [TMIC] Re: Kim's story
Marabeth was diagnosed with MS after two exacerbations. The first at T-8
and the second at C-5,6. These attacks were 15 months apart. She was
started on Avonex a.s.a.p. to avoid a third attack. Not all MSers have
attacks on the brain, so that one is not a valid criteria. In my opinion,
anybody with even one attack should be put on interferons. Especially if
the second attack is really a bad one (e.g. total paralysis,
>etc..) but those in control say no, not yet. I think the ins. co's balk
at the expense involved, but their excuse is that not enough tests validate
the 'everybody gets it now' approach. Bobby Jim in Memphis