[TMIC] Unidentified subject!
David Johnson (SuperDave-(AT)email.msn.com)
Wed, 30 Jun 1999 17:46:47 -0700
Hi,
I guess I need to share my story with whoever wants to know. I am a 23
yr old female who had double vision 2 years ago. Nothing else, just 6th
intercranial nerve palsy. Well, they diagnosed me with viral meningitis and
gave me high dose Aleve to treat me. About 1 1/2 months later, the double
vision went away. Well, now I am having an episode of numbness and
tingling. I went to the Rodeo on April 20 and got up from the seat to leave
when I noticed my rear was numb. I did not think much of it since I had
been sitting for the last 2 hours on a hard bleacher, but I did think it was
quite severely asleep. Anyway, I woke up the next morning and the numbness
was still there. It took me a couple of days to believe myself and to get
over the embarrasement of having a "numb butt". Anyway, I went to see my
internal med doc and he did a neuro exam and drew basic labs and said that
he could not see anything wrong, but would send me to a neurologist. Well,
over night my symptoms went down my legs. Over another, up my back, into my
arms, and across the bridge of my nose. I was just numb and tingly. Not
completely numb, but definetly deminished. Later, I figured out that
everything felt warm, and that it was difficult to see how warm my meals
were. The neurologist did MRIs and brain MRI was negative, but spine MRI
has 1 lesion at T9 level. Well, since he had been there 2 years ago during
the double vision, he said that I probly have MS, so he sent me to a
specialist. The specialist said that I only have a 5% chance of having MS
with a negative brain MRI and also that I only have 1 lesion. So, I was
diagnosed with TM. I don't get it, isn't 5%= 1 in 500? Isn't that a better
chance than the 1-5 in 1 million for TM diagnosis? Not that I want MS, but
I think that the doctors are a little to excited to tell me that "there is
only a 5% chance of you having MS, so I am going to diagnose you with TM".
Nevertheless, I was treated with IV Solumedrol and tapered with Prednisone
(being a nurse--I know the Side Effects of these babies). Anyway,
afterwards I developed the spasticity and cramping of my muscles and was put
on Neurontin 600mg three times per day. I just suffered a miscarriage of my
first pregnancy 2 1/2 months prior to this last episode. I must say that
this was just alot to handle at one time. Now, I still want to get pregnant
and have a baby, but I am so confused as to the "what ifs" that I don't know
what I want to do. My numbness is still there, but the tingling comes and
goes. I am supposed to go back to the neurologist in a week, so hopefully
good news. I had discussed the use of Avonex, but my neurologist decided
that it would be best to wait until my 9-12 month follow up MRI. Anyway, I
want anyone to feel free to e-mail me at:
SuperDave-(AT)msn.com
Kim