Re: [TMIC] My brother

Ann Lindstrom (annlindstrom(AT)yahoo.com)
Tue, 29 Jun 1999 16:41:51 -0700 (PDT)

Debby - there is always some possibility of
improvement. I can't believe that they told him that!
However, while we are working on and waiting for
improvement, we also need to learn how to live our
lives in the mean time. It sounds like your brother
is doing great. Side note - antidepressants aren't
all bad - they have helped me alot. This thing is
depressing - Ann

--- Debby Kramer Martinich
<debby_kramer_martinich(AT)csi.com> wrote:
> On Thursday, June 17, my brother Dave called 911
> because he thought he was
> having a heart attack. One second, he was sitting
> at the computer typing
> away and then he felt a sharp pinprick between his
> shoulder blades. Pain
> rapidly spread around to his chest and his arms went
> numb. The ambulance
> came and took him to the hospital. Within a short
> period of time, he was
> paralyzed from the chest down - but was still in
> tremendous pain. The
> doctors were very good. They first ruled out an
> "aortic disconnect" (or
> something like that). They did an MRI, which was
> inconclusive, so they did
> a myelogram. They had put him on steroids right
> when he was brought in to
> the ER. They did back surgery on him that evening
> because they saw some
> calcification on his spine that they thought might
> be compressing and
> causing the paralysis. After the surgery, they told
> us he either had TM or
> had suffered a stroke to the spinal cord.
>
> By Sunday (his first father's day) he was able to
> slightly move a toe and
> felt pain when he got a shot in his belly. The
> neurologist told us that
> since he had shown early signs of improvement, his
> chances at recovery were
> now better than average - we were elated! He
> finished his course of
> steroids and was moved to a rehab hospital. We all
> had such high hopes at
> this point. Now the reality sets in - they tell him
> he needs to accept his
> paralysis and learn to live with it. They are
> saying the doctor should
> never have told him he had a good chance of
> recovery. In essence, they are
> killing his spirit. Yesterday was the lowest of the
> lows so far. They
> were considering putting him on an antidepressant.
> One nurse finally came
> in and told him he needed to be in his wheelchair so
> that his body could
> remember what it is supposed to do - i.e. sit up.
> He sat in his chair for
> 4.5 hours. When he got back in bed, his wife got
> him to close his eyes and
> just try to wiggle his toes. HE DID IT!! Then he
> was able to move both of
> his kneecaps. Then he was able to turn his foot and
> leg inward from his
> hip. He has a renewed outlook on things. Once
> again, he feels he will be
> able to get better if only he works hard at it.
>
> My question is, are rehab hospitals required to be
> so negative? What's the
> point? Why try and crush someone's spirits when
> they are already so down?
> My brother knows there is a chance he won't improve
> any more than he
> already has, but why on earth should he stop trying
> to improve? Any
> responses will be appreciated.
>
> Take care, my prayers and thoughts are with all of
> you,
> Debby
>
>

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