Re: [TMIC] Father has Transverse Myelitis

Ann Lindstrom (annlindstrom(AT)yahoo.com)
Wed, 23 Jun 1999 16:09:24 -0700 (PDT)

Angie - Welcome to the group. It sounds like your Dad
has a great attitude, but I know this is hard on all
of you. Please keep us posted on how he is doing -
Ann
--- Angie Cohen <angiec(AT)bulloch.com> wrote:
> My name is Angie Cohen. My father, Buddy, (who is
> 56) has had
> Transverse Myelitis since July 14, 1998. For three
> weeks prior to
> becoming paralyzed, he had virus-like symptoms and
> complained of his
> skin being very sensitive to touch.
>
> When he first became ill, he was completely
> paralyzed from the T4
> region down. After spending about 2 months in
> Shepherd Spinal Center in
> Atlanta, he regained some feeling back in his toes
> and then his legs.
> In the months since he has left Shepherds, he has
> gone to physical
> therapy in Savannah, GA (near our home in Rincon)
> and is working on
> building strength in his legs. He has some minimal
> movement back in his
> legs and uses Swedish knee cages to practice
> "walking". He is still
> incontinent, and must wear a narcotic patch along
> with a Tens machine to
> combat the pain in his back and legs. From the T4
> region and below, he
> is ALWAYS cold. It's the middle of June in
> Savannah, GA and he sleeps
> in thermal undewear and an electric blanket!
>
> Although my Dad has been through a rough time, he
> has a wonderful
> outlook and attitude. He puts all he has into his
> therapy because he
> truly wants to get better. Rather than feel sorry
> for himself, he does
> all he can do to make the best of his situation. My
> mother, Vickie has
> been right by his side since he became sick.
>
> He and my mother would very, very much like to talk
> with someone who is
> in or has been in the same or similar situation. I
> would very much
> appreciate any correspondence. My parents do not
> have access to a
> computer, but I will gladly pass along any
> information I receive to
> them!
>
>

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