Your english is very good. I have had the opportunity
to visit your country twice, and loved it both times.
Three of my grandparents were Swedish, but I don't
speak the language - Even though my last name is
Lindstrom, and I look very Swedish. The swedes were
very gracious and helpful. Ann
--- Josefine Andin <josan948(AT)student.liu.se> wrote:
> Hi
> Iīve been reading messages here on and of for a few
> month, but for some
> reasons I havenīt written myself yet. Partly because
> Iīm a bit sceared of
> writing in a language I donīt have total control of
> ( I hope You will
> excuse my bad English), and partly because I simply
> havenīt had the time to
> write. Anyway...this is me.....
>
> Iīm a 20-year-old girl, named Josefine and I live in
> Sweden. I study
> Medical Biology at the University of Linkoping.
> I was diagnosed with TM in october 1992 on the age
> of thirteen. Then my
> level was C4-C6, but nowadays I would say it is
> around Th1.
>
> Beeing 13 years old means a lot of fixation in how
> you look and what you do
> and so on (at least here in Sweden). That among
> other things made me train
> a lot. I swam 4-5 times a week and ran every morning
> before school. During
> the autumn of 1992 I caught a cold which developed
> into a mycoplasma
> infection. Nevertheless I kept running and swimming.
> One night after my
> regular swim-training I went to bed around 11 pm, a
> bit more tired then
> usally - maybe... A few hours later, around 1 am, I
> woke up and tried to
> get to the bathroom, but I just dropped down on the
> floor, unabel to move
> my legs at all. Of cause I got scared and screamed
> for my parents. My
> mother, who is a doctor, told me that I was probably
> only a bit tired, but
> after a while she phoned the hospital for advice.
> While she spoke I could
> feel the paralysing travels upwards, to my arms
> and to my fingers. An
> ambulance came and I got into our hospital, which
> unfortunatly it is a
> small one with no resources at all, so I was sent in
> a ambulance to a
> bigger hospital 250 km away. My breathing became
> worse so I almost ended up
> in a ventilator, but fortunately I didnīt need that.
> They had great difficulties deciding what was wrong.
> They talked about MS,
> but the MRI said no, after a while they decided that
> it was
> Guillian-Barre-syndrome. But later on they changed
> their minds again and
> told me that it was myelitis. (Since that was easier
> to pronounce, I was
> satisfied....)
> There was some more transport between hospitals and
> after a while I got to
> a childrenīs unit where they did know exactly
> nothing about myelitis...so
> rehabilitation took a while. Finally I got my
> physical training....
>
> So, Iīm still using a wheelchair, but I manage quite
> well on my own. I live
> on my own and I have no help, (except for changing
> the curtains and the
> bulbs in the ceiling-lamps).
> Through all these years I have had constant pain in
> my lower back and in my
> shoulders. Sometimes worse, and sometimes not that
> bad. Anyway, nothing
> helps then, not laying down nor sitting, not even
> drugs helps. Now Iīve
> been trying stronger drugs, but I just feel dizzy
> and the pain is still
> there so I guess I just have to ignore the pain.
> Iīve noticed that the pain
> has become a bit more severe since I moved from my
> parents to my own
> appartment, I suppose thatīs because I have to do
> all sort of cleaning and
> so, on my own. And I donīt want to have any help, I
> want to manage on my
> own....
>
> I better stop now. I really enjoy this list, Iīve
> learn so much, and hope
> you will continue to write....
>
> God bless you all!
> Love
> //Josefine Andin
>
>
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