--- Sonoran Desert <sonorandesert(AT)home.com> wrote:
> Hi,
> I am new to the list. I came down with ATM, acute
> onset (inflammation
> in thoracic cord as confirmed by MRI) several years
> back. It was
> preceded by a flulike illness, and was presumed to
> be parainfectious or
> autoimmune type. Simultaneously with the ATM, my
> immune system went
> haywire with infections and debilitating fatigue.
> This was initially
> diagnosed as post-viral fatigue syndrome, and later
> chronic fatigue
> immune dysfunction syndrome. I have had much
> testing demonstrating
> global immune and metabolic dysfunction, including a
> positive test for
> the new CFIDS marker 2-5-A Synthetase and RNASEL
> enzyme deficiency
> (REDD). MS and lupus, most other illnesses have
> been ruled out.
>
> I am interested in hearing from others who have had
> TM or other
> CNS/spinal cord disorders who have been diagnosed
> with CFIDS or who have
> crippling fatigue that appears to be systemic. I am
> also interested in
> better understanding the connection between spinal
> cord
> injury/dysfunction and fatigue. I am also
> interested in better
> understanding viral and autoimmune onsets of ATM. I
> know of two people
> who had spinal meningitis (one viral, one
> bacterial). Both were left
> with a fatigue sequelae, and one was eventually
> diagnosed with CFIDS.
> And as we know, polio often has a fatigue sequelae.
>
> In addition, I have severe dysathesia in the seat
> and saddle area from
> the ATM. I am interested in learning about meds or
> natural remedies for
> this kind of nerve pain. I could not tolerate
> Neurontin, and Baclofen
> and Klonipin did not help the pain, although
> Klonipin helps my muscle
> spasms. Thank you.
>
> Elaine
>
>
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