[TMIC] my story

Christine Bickmore (cjbickmore(AT)sniffout.com)
Tue, 18 May 1999 02:32:09 +0100

Hi, I was diagnosed with t.m. in July, 1996, I went through the tests like
MRI scan, lumbar punctures, blood tests, and nothing showed up so the
doctors in the hospital concluded that the neuophathy and high temperature,
headache, disturbed hearing, photophobia, was caused by a virus getting into
the central nervous system, and called it t.m. They told me that the high
doses of steroids would stop the deterioration and in time my mobility and
other difficulties would disappear and I would get back to nursing. Since
then I have had several relapses with high temperatures and inability to
co-ordinate by legs. I just assumed I have caught another virus and it had
set me back, but now 3 years later I am still struggling and I have not
managed to return to work. The neurologist who last saw me in July 1998 said
that I now had M.E.(cronic fatigue syndrome), but now some doctors are
saying that they think I have M.S. The problem with that diagnosis is that
nothing shows up on the tests, although I show the classic symptoms
visually. I have received alot of support and info. from this group, so
thank you for that. Just recently I have started Amitriptyline, 10mgs at
night, to help with the nightmares and sleep disturbances, and this drug has
seemed to have help with the nerve messages getting through to my legs. Will
keep you informed with developments I am at present waiting to see a
neurologist at St Bartholomew's Hospital, London, but here in England I
could wait 6-9 months for an appointment. Once again many thanks for the
support during the past 3 years, my father has been downloading the sheets
and printing them for me because I did not have a computer/email until
recently.Regards Chris.