Re: [TMIC] Is it, or isn't it...and does it really matter..??

Ann Lindstrom (annlindstrom(AT)yahoo.com)
Mon, 24 May 1999 15:17:09 -0700 (PDT)

Robert - My primary doctor said much the same thing a
while ago. Some of us may never really know what it
is that we've got. I think for me, getting a diagnosis
provided some sort of closure - at least there is a
name. Ann

--- Robert and Marabeth <74541.2151(AT)compuserve.com>
wrote:
> I'm noticing that a few of us seem to obsessed with
> classifying our
> illness(es) as this or that or the other. Like
> the proper label is
> _THAT_ important.....?????
>
> And for what purpose.....??? After some reading,
> I've come to the
> conclusion:
> does it really matter...?? Shouldn't we investing
> our energy in finding
> the proper treatment, regardless of what the neuros
> call our
> afflictions...???
>
> Some of y'all are TMrs who seem to be in worse shape
> than some MSrs I've
> read about. Even though many believe that MS
> is.....well, ugh. The kiss
> of death. Hardly.
> So which 'illness' is worse....??? And why does the
> name MS evoke such
> fears.....??
> Granted, a huge percentage of doctors out there
> (waaaay too many for my
> taste) know next to nothing about CNS diseases.
> But spending all this time trying to decide if one
> has TM or MS or maybe
> it's TM>MS, or TM<MS.....??????, why, it's a waste
> of time, methinks.
>
> How about calling it Multiple Myelitis......????
> It's just as good a name
> as any.
> And what does 'transverse' mean anyway......??? To
> give an example, the
> myelin on the spinal cord has been chewed off by a
> virus (as some think),
> ergo myelitis. A scar or plaque is what's left
> after the myelin's been
> chewed off, ergo the name slerosis (hardening or
> thickening of the sclera,
> another substance on the spinal cord).
> Multiple, why, when there's more than one plaque.
> Simple.
>
> So tell me, what's in a name......??????
>
> Enough already, Robert
>
>

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