Re: [TMIC] back from wedding-warning long story

twinkie (twinkie(AT)javanet.com)
Sat, 22 May 1999 20:40:13 -0400

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Carri,
Sounds like you had a really great time. I'm sure the way everyone =
treated you was in part because of the way you accept yourself. The =
dancing sounds like fun too. Just shows you how you can enjoy yourself =
anywhere,even when there are lots of steps to be carried up!
Cheryl=20
-----Original Message-----
From: CarriR <leokitty(AT)worldnet.att.net>
To: TMer's <tmic-list(AT)eskimo.com>
Date: Friday, May 21, 1999 2:04 AM
Subject: [TMIC] back from wedding-warning long story
=20
=20
What a week it has been! I had my cystoueroscopy (same day surgery) =
procedure last Wed. I fared well, except I had a difficult time waking =
up from the anesthesia (3 hours later than expected). Good news - =
nothing physiologically wrong with bladder/urethra. Bad news - =
incontinence due to TM and can do nothing but continue to self-cath, =
take meds, and hope for change.
=20
Friday I left with for Boca Grande, which is a beautiful island =
south of Sarasota, FL. I was my best friend's bridesmaid. It was =
exciting, beautiful, and I had a wonderful time! My mom went with me - =
everyone thought I should be escorted after the effects of the =
anesthesia, so we got to spend the week-end together. We went to the =
wedding rehearsal Fri evening. It was at the church which was small, =
quaint, and cute. And old. I had to be carried up and down about 6 =
steps in the church in my chair, and a pew had to be unbolted and =
repositioned so that I could fit through to my destination spot. =
Everyone and I ean everyone, including the pastor, was great the entire =
week-end about the chair. Pictures were taken at the croket club, =
sitting on a bench with a ivy lattice covering it. The wedding went =
fine, except when I went to go past the pew that was moved the night =
before, I GOT STUCK! It felt like a lifetime, but the brides mother =
just yanked on my tire and helped. I thought everyone noticed, but they =
said they didn't. At least the pastor was honest with me, because on =
the way out after the wedding he jokingly said, "Someone must have moved =
that pew on us overnight because I know your chair didn't grow." =
Unfortunately, on my way out of my spot by the pew, I got stuck again. =
This time the groomsman gave me a little push to help and we continued =
to walk back up the aisle as if nothing had happened. He handled it =
great. =20
=20
At the reception, I was carrried in my chair up about 25 stairs - by =
this time I am really having faith in my "lifters." Once inside I =
mingled and ate like everyone else. As the evening progressed, I was =
carried in and out to the back deck, where there was a live band =
playing. The fun really began when the bride and groom took their first =
dance together. I was upfront watching when the groom's mother (who is =
truly a beautiful woman inside and out) came up behid me and told me, " =
Once they are finished, it's our turn." I told her I had not yet danced =
in my chair. She didn't care. I told her I was ready as long as she =
would "lead." That was my first dance. It was wild and crazy. I =
clipped the flowergirl's legs (thank God she said she was OK, but I know =
my foot pedals had to have left some bruises). A few minutes later one =
of the groomsmen broke in to dance with me. We did "twirls" and "sways" =
however we could. It was so much fun. Later another groomsmen danced =
with me. By now I am getting the hang of dancing, better. Either I was =
gaining more control and not rolling over anyone or eveyone else was =
moving out of our way. I really didn't notice since I was having so =
much fun. Later I danced with the groom, with the bride's permission of =
course. Considering I really only knew the bride and some of her =
family, it was the best wedding I ever attended! At midnight the =
clubhouse began to politely kick everyone out. There was a party =
nearby, and I was invited. I was exhausted and had not properly =
self-cathed the entire day. I wore a diaper to be on the safe side. I =
politely declined the invitation - our hotel was 30 minutes away and I =
don't think my mom ws ready to party any more. I am so glad I did not =
let myself get talked into going - even though the bride and groom both =
asked me to go. By the time me and mom got back to the hotel, I had an =
accident. Unfortunately, the diaper did not protect my dress or =
cushion, but it could have been worse. I could have acidentally ran =
over my dress (floor-length) with my chair and ripped it off myself. Or =
I could have been dropped down 25 stairs, or, or or. Considering =
everything, I still had the best time since my injury 7-98. Oh, two =
guys asked for my number with my mom nearby. My mom was great! She just =
talked to them like they were a new friend. What I learned from this =
week-end is 1) Try not to get married on an island - everything is =
upstairs. 2) If you do get married on an island make sure you have =
someone willing to lift you. 3) Or just pray that you get lucky as I =
did and you meet some really nice people who are not disabled-phobic and =
will lift you wherever and whenever you want! and 4) Always be willing =
to try something new and exciting. =20
=20
Carri

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Carri,
    =20 Sounds like you had a really great time. I'm sure the way everyone = treated you=20 was in part because of the way you accept yourself. The dancing  = sounds=20 like fun too. Just shows you how you can enjoy yourself anywhere,even = when there=20 are lots of steps to be carried up!
       = Cheryl 
-----Original = Message-----
From:=20 CarriR <leokitty(AT)worldnet.att.net&g= t;
To:=20 TMer's <tmic-list(AT)eskimo.com>
D= ate:=20 Friday, May 21, 1999 2:04 AM
Subject: [TMIC] back from = wedding-warning long story

What a week it has been!  I had my cystoueroscopy (same = day=20 surgery) procedure last Wed.  I fared well, except I had a = difficult=20 time waking up from the anesthesia (3 hours later than = expected).  Good=20 news -  nothing physiologically wrong with = bladder/urethra.  Bad=20 news - incontinence due to TM and can do nothing but continue to = self-cath,=20 take meds, and hope for change.
 
Friday I left with for Boca Grande, which is a beautiful island = south=20 of Sarasota, FL.  I was my best friend's bridesmaid.  It = was=20 exciting, beautiful, and I had a wonderful time!  My mom went = with me -=20 everyone thought I should be escorted after the effects of the = anesthesia,=20 so we got to spend the week-end together.  We went to the = wedding=20 rehearsal Fri evening.  It was at the church which was small, = quaint,=20 and cute.  And old.  I had to be carried up and down about = 6 steps=20 in the church in my chair, and a pew had to be unbolted and = repositioned so=20 that I could fit through to my destination spot.  Everyone and = I ean=20 everyone, including the pastor, was great the entire week-end about = the=20 chair.  Pictures were taken at the croket club, sitting on a = bench with=20 a ivy lattice covering it.  The wedding went fine, except when = I went=20 to go past the pew that was moved the night before, I GOT = STUCK!  It=20 felt like a lifetime, but the brides mother just yanked on my tire = and=20 helped.  I thought everyone noticed, but they said they = didn't. =20 At least the pastor was honest with me, because on the way out after = the=20 wedding he jokingly said, "Someone must have moved that pew on = us=20 overnight because I know your chair didn't grow."  = Unfortunately,=20 on my way out of my spot by the pew, I got stuck again.  This = time the=20 groomsman gave me a little push to help and we continued to walk = back up the=20 aisle as if nothing had happened.  He handled it=20 great.  
 
At the reception, I was carrried in my chair up about 25 stairs = - by=20 this time I am really having faith in my "lifters."  = Once=20 inside I mingled and ate like everyone else.  As the evening=20 progressed, I was carried in and out to the back deck, where there = was a=20 live band playing.  The fun really began when the bride and = groom took=20 their first dance together.  I was upfront watching when the = groom's=20 mother (who is truly a beautiful woman inside and out) came up behid = me and=20 told me, " Once they are finished, it's our turn."  I = told=20 her I had not yet danced in my chair.  She didn't care.  I = told=20 her I was ready as long as she would "lead."  That = was my=20 first dance.  It was wild and crazy.  I clipped the = flowergirl's=20 legs (thank God she said she was OK, but I know my foot pedals had = to have=20 left some bruises).  A few minutes later one of the groomsmen = broke in=20 to dance with me.  We did "twirls" and = "sways"=20 however we could.  It was so much fun.  Later another = groomsmen=20 danced with me.  By now I am getting the hang of dancing, = better. =20 Either I was gaining more control and not rolling over anyone or = eveyone=20 else was moving out of our way.  I really didn't notice since I = was=20 having so much fun.  Later I danced with the groom, with the = bride's=20 permission of course.  Considering I really only knew the bride = and=20 some of her family, it was the best wedding I ever attended!  = At=20 midnight the clubhouse began to politely kick everyone out.  = There was=20 a party nearby, and I was invited.  I was exhausted and had not = properly self-cathed the entire day.  I wore a diaper to be on = the safe=20 side.  I politely declined the invitation - our hotel was 30 = minutes=20 away and I don't think my mom ws ready to party any more.  I am = so glad=20 I did not let myself get talked into going - even though the bride = and groom=20 both asked me to go.  By the time me and mom got back to the = hotel, I=20 had an accident.  Unfortunately, the diaper did not protect my = dress or=20 cushion, but it could have been worse.  I could have = acidentally ran=20 over my dress (floor-length) with my chair and ripped it off = myself. =20 Or I could have been dropped down 25 stairs, or, or or.  = Considering=20 everything, I still had the best time since my injury 7-98.  = Oh, two=20 guys asked for my number with my mom nearby. My mom was great!  = She=20 just talked to them like they were a new friend.  What I = learned from=20 this week-end is 1)  Try not to get married on an island - = everything=20 is upstairs.  2) If you do get married on an island make sure = you have=20 someone willing to lift you.  3)  Or just pray that you = get lucky=20 as I did and you meet some really nice people who are not = disabled-phobic=20 and will lift you wherever and whenever you want!  and  4) = Always=20 be willing to try something new and exciting. 
 
Carri
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