Re: [TMIC] What Do I DO Now?
Errol White (eamjwhite(AT)bigpond.com)
Sat, 1 May 1999 20:28:11 -0700
Hello Kathy,
Like all the others have said, don't over do it, recovery takes a long time
and you just may have some residual problems, I came down with TM in
December 1993, and I am lucky enough to see little improvements still, but I
do have a couple of seemingly permanent problems such as bladder and bowel
hickups, but they are controllable, and life goes on. I am nearly 56 years
of age, I work full time as an administration Officer in a busy Human
Resources unit of a large business unit of a city council, I commute 40
kilometers to work each morning and 40 kilometers back at evening in my own
car, I use an electric scooter for long distances and walk short ones with
two walking canes to assist. I travel by road to visit relatives regularly
distances in excess of 500 kilometers round trip.
All I can add really is to gradually ease back into work, work hard at your
rehab, be very positive and focused and never lose sight of the big picture
in your life.
Kind Regards from Errol, Narangba, Queensland, Australia.
-----Original Message-----
From: chris bower (by way of TMA <myelitis(AT)myelitis.org>)
<ckbower(AT)csrlink.net>
To: tmic-list(AT)eskimo.com <tmic-list(AT)eskimo.com>
Date: Friday, 30 April, 1999 10:57 AM
Subject: [TMIC] What Do I DO Now?
>I was recently diagnosed with transverse myolitis and was hospitalized for
>two weeks which I underwent some heavy duty steroids and anti-seizure
>medication. I went back to work about a month ago and up until a recent
>cold felt okay. I am having a relapse and have pain in my back that
>doesn't seem to ever go away. The tingling and iching have also returned.
>The doctors have me back on steroids and off of work. He originally said
>my MRI was "scary".
>
>I am so afraid I will have to live with this forever. I had a baby about
>two months before this happened and I had an epideral. Could the epideral
>have triggered this condition. Should I ask for a second MRI to be done?
>I don't think this medication is working but I'm afraid to go off of it for
>fear I will end up back in the hospital. With a 6 month old baby I can't
>aford to slow down. Can someone help me to understand this condition and
>see if I am going in the right direction with medication?
>
>Thank you
>
>Kathy
>