Well, I haven't written since late January when I asked about a possible
TM/AVM connection. I didn't write because it has taken this long to come
up with an answer as to why I am having numbness again and this time my
hands and face are involved. Well, I was diagnosed a week ago Friday
with MS. A neuroradiologist looked at my MRI films and found lesions in
the brain, c-spine and t-spine. That, together with my episode of TM,
gives me the diagnosis of MS. So I guess I have "graduated" from the
world of TM to the world of MS - hey, at least people have heard of MS
when you tell them what's wrong - right? The initial shock has started
to wear off but it is still hard to believe in a way. I hope to be
starting on Avonex later this week or perhaps next week and I hear lots
of encouraging stories about people who are on the drug. My neuro thinks
I may actually have some more improvement from my post-TM problems since
he says you can improve up to 2 years and I only got 13 months before
getting hit this time. It would be wonderful but I don't think I'll hold
my breath for too much more than what I have already gotten (which isn't
as bad as it could be by far!!!).
I plan on still posting to this board when I get the opportunity as I
know there are some others who have MS and still post here (Sharon in AZ
are you still there? I also see new names like Robert and Marabeth). In
fact, I booked my airline tickets today to attend the TM Conference in
August which I am really looking forward to. TM has affected my life at
this point more than MS has so I am looking forward to hearing the
experts and meeting some of you.
I know I will always have the support I need from my special friends on
the TMIC (hi Doc, Gunny, Jane D., Pat S., Patty K., and others).
Well, it is late so I'll be signing off for tonight. Thanks for
everything and I'll be keeping in touch.
Lori in Florida
___________________________________________________________________
You don't need to buy Internet access to use free Internet e-mail.
Get completely free e-mail from Juno at http://www.juno.com/getjuno.html
or call Juno at (800) 654-JUNO [654-5866]